hours

  1. G

    So scared and driving myself insane

    First of all I can't believe I'm doing this. I am so sorry if this is disrespectful. I just feel so alone and scared. The past few weeks have been a nightmare. First I felt terrible, I will admit I am under huge amount of stress. But it all cummulatrd one night when I had a extremely painful...
    • Gingy
    • Thread
    • anxiety burning choking driving headache hours mad meds movement mri problem scared sleep stress testing tongue twitching
    • Replies: 6
    • Forum: Could this be ALS?
  2. P

    Coping, Just about.

    Hi, I am new to this forum. My Husband Steve has ALS, diagnosed 1/02/2015. Steve had a trach and feeding tube fitted in May. Just about feeling like I am getting my head around it over the last few months. The care involved is incredibly time-consuming and tiring. I feel trapped at times, feel...
    • pojepo
    • Thread
    • als back bed coping cough assist diagnosed feeding feeding tube fingers go away guilt hours insurance life love meds money reading story suction trach vent work
    • Replies: 3
    • Forum: Current caregivers
  3. S

    With sadness

    My PALS, H (Harry), passed away very early Sunday morning, October 1st. His children and I were with him and we were able to keep him comfortable until the end. I can't write details - I'm struggling to get this out. My heart is so heavy and I can't believe it's over. Hospice had just told us...
    • sunandsea
    • Thread
    • children early grief heart hospice hours life sad
    • Replies: 28
    • Forum: In memory of
  4. K

    Worried If This is ALS

    Hi All, This is the Time Line 2006- When I was doing exercise, I felt that the right leg is tired more than left. Then I saw that my right hand was a bit weak compared to left. Went to Several Doctors, they did EMG/EEG/MRI/NCV etc.. Everything was normal and they said it is nothing. Years...
    • krisamba
    • Thread
    • abdomen als atrophy confused do i have als emg exercise foot hours mri muscle muscle wasting problem tests tongue weakness worried
    • Replies: 23
    • Forum: Could this be ALS?
  5. NothingButLove

    In about 6 hours, my wife will have a feeding tube

    In about 6 hours, my wife will have a RIG placed at UCI's radiology suite. What a crazy two months. It all started on August 1st. Here's a brief run down: FVC down to 44% from 87% four months earlier. Doctor prescribes Trilogy. (Thank you Laurie for the settings!) Wife takes vacation with her...
    • NothingButLove
    • Thread
    • advice als cals caregivers caregiving clinic depression feeding feeding tube fvc health hope hospice hours medical pressure rig trilogy vacation wife
    • Replies: 17
    • Forum: Current caregivers
  6. Lkaibel

    A Place to Speak My Truths

    That is what this forum is to me. I am happy for any constructive, supportive things I can do for others but I honestly just love how I can say what I mean here about my own life. People ask me how Brian is, bless their hearts. I appreciate it, and I say he is okay/stable. I may change that to...
    • Lkaibel
    • Thread
    • bed cats cold coughing depressed diagnosis foot hours ice kids life lonely love night phlegm radicava running sad sleep trial vacation vitamins work young
    • Replies: 38
    • Forum: Current caregivers
  7. B

    Abnormal EMG, no clear diagnosis, looking for emotional support

    This thread is not about asking whether I have ALS. After this past week, I've started to accept that I probably do. But I'm looking for emotional support going forward. My symptoms started in April with unexplained muscle soreness in my right bicep and thumb. I saw a neurologist: no weakness...
    • bsonrisa
    • Thread
    • abdomen abdominal advice als arm back clean emg cramps depressed diagnosis early emg fasciculations hours movement muscle muscles neurologist pain problem research support symptoms test thenar thumb weakness
    • Replies: 19
    • Forum: Could this be ALS?
  8. Y

    Someone Please Explain Cramping to me?

    I've spoken to a doctor and still was unclear how this cramping phenomenon works with MND patients. Here are my questions, and a brief story of myself (Yes, I know I've been on here before). 1. Are your cramps sudden, and often during periods of inactivity? 2. How long do the cramps last...
    • Yaga
    • Thread
    • ability athletic cramping cramps hours mnd muscle pain questions running sleep sporadic story weakness wrong
    • Replies: 9
    • Forum: Could this be ALS?
  9. N

    My Father

    Hi All, My father passed away on 8th Aug 2017 from ALS. I am writing this for others who may find our experience helpful. We live in Mumbai, India. My father showed symptoms for ALS since Feb 2016. Initial symptoms included weight loss, weakness, lethargy (especially in the morning) and...
    • niravshah81
    • Thread
    • als bipap breathing diagnose early family father goodbye health helpful hours information mnd morphine night onset oxygen sleep swallowing symptoms tests travel ventilator weakness weight loss work
    • Replies: 9
    • Forum: In memory of
  10. S

    Have twitching throughout body and fear I have ALS.

    I'm a 46 year old male and for quite a while now I've had random jerky movements in my body. Kind if like how you jerk when you are falling asleep, but during the day too. Had this for a few years. A toe will jerk, a few minutes later a finger or hand or other body part. Last week I started...
    • Skyclad
    • Thread
    • als atrophy back clinical falling fear finger hours muscle muscle twitches neurologist scared symptom symptoms twitches twitching weakness
    • Replies: 14
    • Forum: Could this be ALS?
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