hospice

I'm obsessed with fiber arts and have been learning how to dye yarn, fabric, and wool for spinning into yarn. Not long after my husband was diagnosed with ALS we met with a contractor who specializes in modifications for accessibility and does a lot of work for the local ALS community. During a...

Hello:My mom was diagnosed in April/May, last Jan she was still driving, now pretty much confined to w/c. She has been having a lot of pain in her legs. Mostly what I read is that ALS does not have pain, but that each person experiences different things. She is on hospice now, taking...

well, the finalchapter in my life has started, tomorrow I go into hospice. I now have little use of my hands and my legs can barely hold me up anymore. I'm on bipap 24 hrs/ day. I think it won't be too long now and I will be rid of this horrible disease. They discussed with me when the morphine...

My husband just got some lab results back and of course it is Saturday so we cannot call the doctor. I did some research and if I am reading correctly the results have to do with heart disease and renal failure depending on the site. It reads BUN/Creatinine Ratio 8 . Flag low. His ldl...

My dad has taken a turn for the worst the last couple of days. He has had so much mucus build up that he's unable to cough up. He usually suctioning and won't use the cough machine much because he believes it will make it worst. His oxygen level has been lover so hospice nurses have been wanting...

Hello all, I just wanted to thank all of you for your support and willingness to share your knowledge on ALS. Mom was checked into the hospital a week ago with pneumonia. A swallow study revealed that she is aspirating whenever she swallows. She has denied a G-tube, and yesterday she was...

My dad passed away this past Saturday morning November 21st at 3 a.m. I was able to fly to Dallas and be there in time. My brother, sister, and I were there with him. He died at my sister's house. I am so glad that he didn't linger any longer then he did. He was really having a rough time...

my pc been down . lots of things has been going on. hospice has cam in it's been better for jane. got the ramp to the house done now a ramp for the van. check out what i got from Blue&Gold thanks :)

My grandmother (87yo) started with right arm numbing over the winter. January, maybe? It gradually got worse to the point that she couldn't use the arm anymore. No one could figure out what was going on. At the end of July, she fell in the tub and then passed out and ended up in the ER. She...

Anybody here ever heard of an ALS patient receiving 8 liters of oxygen in combination with Bipap but no ABG testing to properly titrate? I am doing some investigation since I believe this hospice had no idea what they were doing and my mother died prematurely due to C02 buildup leading to...