hope

  1. Clearwater AL

    Possible scam alert...

    This possible alert goes to Veteran Members and other members here too. This morning I received a phone call from a TriAlliance Community Service (I think that was correct name) saying the VA referred me to them. I don’t think the VA refers their patients to civilian services. Here’s how the...
  2. J

    Brainstorm Nurown 'Right to Try' participant shares progress

    As some of you may know, Brainstorm granted one PALS free access to NurOwn as a 'thank you' for the work he did on Right to Try. He is not in a trial but is being given the course separately. His update is on Facebook -- matt.bellinski.7 Mod note -- not linking directly due to fundraising...
  3. C

    Follow up, same symptoms and test results. Upcoming EMG

    Hello i posted on here a few weeks ago and since then i saw a neurologist regarding my concerning symptoms, would post in my old thread but its closed and i was wondering if i could ask some questions. Since my last post, the weakness (I will say perceived weakness for the time being as the...
  4. W

    Fascinating Fasics

    Thanks to anyone reading or replying to my thread. I have been lurking on here for a few months and have restrained myself from posting. Having witnessed the patience and compassion shown by the sites members and my growing concerns, I hope you don’t mind me posting. I started with...
  5. D

    Neuro App this week..........concerns!

    https://www.alsforums.com/forum/do-i-have-als-als/42870-tick-all-boxes-hoping-best-planning-worst.html#post451730 Hi all, I first posted on this forum 17th October last year (see link) with a vast array of symptoms that I have after time realised that the majority of them were down to my...
  6. 1

    What do I have?

    So glad I have found this group. I have some serious symptoms and questions about tests that I hope someone can answer for me. In April of 2017 I started falling for no reason. My knees would just buckle and down I would go. I fell at least once a week thmonth of April. Then I would go about...
  7. P

    Scared about ALS

    Thank you in advance for your help. I am a 56 year old woman. I have been terrified of ALS for several months and am looking for some information regarding how this disease would affect feet. I am getting a lot of pain in my arches, especially if I attempt to jog. My feet and/or toes will...
  8. T

    Advice for home renovations or adaptations

    Hello: My husband was recently diagnosed and we are meeting with some people next week about renovating or adapting our home. We know we need to widen doorways and make his living space wheelchair accessible, but I'm hoping to tap into the knowledge of people here. Tell us what we don't know...
  9. E

    Is Lyme a scam?

    Hello everyone, We live in a zone where cases of Lyme are frequent. Recently, some people of my town diagnosed with MS / Parkinson's were treated with antibiotics for Lyme and improved. One of them suggested my father see a physician with expertise on infectious diseases. I was extremely...
  10. D

    My dad's progessive weakness - concerning?

    Hi all, I'm a 25 year old male from Detroit and my dad is 53 years old. This post is about my dad. Background info: my dad has plenty of other health problems that make weightlifting harder for him, including arthritis in his knees, a bone spur in his back which causes a lot of pain and some...
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