hope

Hello just got my third EMG done and it showed some new problems that have never been there before. Unfortunately I dont understand those expressions in my medical report and since English is not my mother language it is hard to find and translate it, anyway I hope that someone in here can help...

What can I do? I’ve switched to LH because other formulas gave me diarrhea. Now, first time with it and it is running so slow that i’m afraid i’ll spend hours per bag. What can I do?

Hi all, I sincerely hope I don't insult you by posting here. I have a pretty horrible neurological illness and facing difficulty getting clear diagnosis. I'm not convinced it's als but have thought of PMA. I have numerous rheumatic autoimmune conditions including sjogrens which has caused severe...

Hello, I have came with a lot of hope please give me the exact guide to help my father. My Dad's been suffering from this disease from 06/2016 . From day before two days he is being admitted in ICU as he was having trouble in breathing and also was having problem in swallowing food. He had lost...

firstly, thank you so much to anyone who takes the time to read this. I sincerely hope I could be as selfless if I end up with an MND diagnosis. I can only imagine what you are going through. I have read the stickies. I am 37 and female. I am seeing the neurologist tomorrow evening. I have had...

I was diagnosed Thanksgiving 2017. Most problem with balance and gait. Walking with rollator walker. They say the problem began in hips. I have great difficulty rolling over or getting out of bed without pulling myself up with a rail! Once I pull myself to sitting position, I can use rail to...

Hello Everyone, I hope this is in the correct forum. My dad was recently ( 1/4/18 ) diagnosed with ALS at University of Utah. My mother and I are most likely in denial, however, something just does not seem right from all of the research we have done. I would like to have some insight from...

I am nervously awaiting my next EMG with my neuro. Every day feels like an eternity. I really want to hear that it's not ALS, but we've ruled so many other things out. MRI's of spine & brain are clear, blood work is clear -- we keep ruling things out. My EMG for my right leg was abnormal last...

I'm currently running two threads but on two different topics. Hope that's ok. My husband is on a clinical trial of Pimozide and shortly after starting, he exhibited very worrying side effects. One of those SEs is slurring his words. I'm beginning to worry that it's not just a side effect but...

Please join us for something new Feb 13-14, 2018! https://www.morethanourstories.org Last February three of us did our own mini ALS advocacy day. We had some issues that were very important to us and wanted to get in front of the government appropriations process (which is already iced by the...