Hi all,
I have been having some problems and still undiagnosed with anything. Burning pain and progressive atrophy without 1st repitition motor weakness. The doctors are all stumped as there is significant atrophy and yet EMG findings are normal. It has progressed slowly over 4 years. CK never...
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My sister has ALS. She was diagnosed about 2 and 1/2 years ago. From everything I have read she may have anywhere from 6 months to 13 more years to live. The only part of her body that she can move is her left hand. I just finished reading "On Any Given Day" written by Joe Martin, a Bank of...
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When I was put on Hospice a few months ago I was not told that if I had any other medical emergency not related directly to ALS that Medicare would not pay for it.
I took myself off Hospice February 29, 2008, because I was told a visit to the ALS clinic would not be paid for while on Hospice...
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It's been so long since I've posted...so long that when I glanced through the various recent postings, there were so many new names that I don't know...but I know there may be some of you out there who might remember me. My sister, Kathy, was diagnosed in Feb of 2006. She now has a home health...
HI, haven't been on for a few weeks. We went on a cruise - my DH says he enjoyed it but it will be his last.....so sad because he really loved cruising and seeing many new places all over the world.
When we returned I spent forever on the phone making arrangements for home health care...he is...
I wish someone could tell me what's happening. My mom was diagnosed the first week of July but started having noticeable symptoms mid January 07. She suspects she had more mild symptoms (muscle weakness, fatique, etc) a couple years ago. In January she fell and couldn't get up without help...
My dilemma is to keep hospice or to go without care. I have had hospice for over a year now and have recently been dropped by them due to slow progression. I don't understand, why can't we just have regular home health care without being the hospice? I'm angry! I feel that my local hospice...
I read an article in Reader's Digest about monkeys that help people with ALS or other similar diseases. The program is called Helping Hands and I looked it up on line. They are trained for 5 years and it is a non-profit organization with no charge to the disabled person., They can feed you...
Hello,
My mother in law was disagnosed with ALS last April. Throughout the year prior to that she first had started to have problems with her right leg. When she would walk (she loved to walk around the neighborhood) she said it felt like there was a "catch" in it, and it was just hard to get...
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I have a friend with ALS whose family is curious about any programs that help defray the cost of in-home care. I've spoken to ALSA, Medicare and a home health care agency, and no one is aware of any needs-blind programs. Anyone have any help? (The insurance covers medically prescribed visits...