home health care

  1. S

    A plug for hospice!

    I have been trying to talk my husband into hospice for at least 6 months now, but he has always said he is "not ready yet." I finally called hospice and asked them to come out for a consultation. I told my husband that they were coming out to explain hospice to us and he could decide whether...
    • stephie
    • Thread
    • als equipment family feeding health home health care hospice life pressure quality of life tube feeding wanted
    • Replies: 7
    • Forum: Current caregivers
  2. rmstudier

    Point of depression

    I think I have reached the point of progression where I am chronically depressed. My legs are useless and I can't raise my right arm very high. I need help getting in and out of bed and off the toilet, and need bathing assistance. I can't turn in bed without the hospital bed rails which means...
    • rmstudier
    • Thread
    • arm bed depressed depression health home health care pressure pressure sores progression ramp sleep van venting
    • Replies: 25
    • Forum: People with ALS (PALS)
  3. catcaniac

    Duke ALS clinic update

    Just wanted to update everyone on our visit to the Duke ALS clinic. It was a very long day and my husband actually gave out before the Duke clinic did. Dr. Bedlack and his staff are awesome. Of course one final EMG was the slam dunk for my husband's ALS diagnosis. The doctor basically took a...
    • catcaniac
    • Thread
    • accessible van advice als als clinic breathing chair children clinic dad diagnosis disability emg equipment feeding feeding tube genetic health home health care medicare medicine power power chair progression questions rilutek support swallowing test trip update van wanted young
    • Replies: 10
    • Forum: People with ALS (PALS)
  4. L

    First appointment with neurologist

    Janet had her first appointment today. He is pretty sure that she has ALS but wants her to have an EMG done before he will actuatlly confirm the diagnosis. He said that she is showing weakness in all of her limbs, some worse than others. The doctor did mention that she does seem to have...
    • laurenac81
    • Thread
    • ability als breathing breathing issues communication diagnosed diagnosis disability emg equipment feeding food ftd health heart helpful home health care hope increase information love medical medicare neurologist problems questions reading respiratory social security swallowing symptoms test ventilator weakness wrong
    • Replies: 10
    • Forum: Current caregivers
  5. E

    left 48+hrs/wk without food,water or meds WHAT can I do-desperate :(

    This is a copy of the letter i just sent my doctor explaining what has been happening and why my health care has deteriorated so badly and the evidence-the videos i have of their words to me (CCAC) as well as links to sections of the law that they have violated. I hope you take the time to read...
    • extremewheelchairs
    • Thread
    • als arm back bed catheter children cry death electric wheelchair family family member fear feeding food go away health home care home health care hope hours immediately information kids life lift lifts mattress meds nurses pneumonia power questions reading roho sad sleep story treatment ventilator website
    • Replies: 50
    • Forum: People with ALS (PALS)
  6. K

    23 year old son

    Hello, this is my first post on here, I have been looking through some past threads and already feel better knowing there is so much support and info out there. Everyone here is so supportive and you can really feel the love coming from people who have been through or are going through this...
    • ko17
    • Thread
    • advice anxiety back ball breathing chair dad diagnosed family frustrated guilt health home health care hours info life love movement muscles newbie peg quality of life scared shoulder support timeline wanted work
    • Replies: 33
    • Forum: In memory of
  7. C

    ALS Problems / Ranting

    Before you read this... my intention was to get your opinion... however, by the end, it has really turned into me ranting about how horrible this disease is... so I understand if you don't read any further. I've posted on here a couple of times and the replies have really helped so I thought...
    • chriswhit44
    • Thread
    • ability als back children cry dementia early fear feeding feeding tube health heart home health care hours life money nursing home nursing homes problem problems slurred speech speech swallow symptoms work
    • Replies: 14
    • Forum: Current caregivers
  8. acenoface

    Where can I go to live after I am vented?

    I have been lucky so far. I was diagnosed in February 2005, but I can still operate a computer with a touch pad, and my voice is still strong. But I know my luck can't hold out forever. I have been living with my parents since the diagnosis. I am 38 and they are 67 and 71. There is no way that...
  9. N

    Dad in Indy just diagnosed -79 yo

    Hi everyone, I'm Nanci and my dear old dad was just recentlydiagnosed with ALS by Dr. Pascuzzi at the Indy/IU ALS Center. I'd like to connect with others in town and especially those with older parents with ALS. I am the tech savvy one (dad and step-mom don't use a computer at all). Need to...
    • nancislagle
    • Thread
    • als dad diagnosed english teacher health home health care indianapolis info medicare work
    • Replies: 0
    • Forum: New members
  10. S

    Home health care, anyone?

    I am shocked and disappointed to learn that our health insurance, which we considered to be very good insurance, covers absolutely no home health care for my husband. He is 41 and was diagnosed 2 years ago. He no longer works and spends his day at home in a wheelchair while I am at work...
    • stephie
    • Thread
    • als caregiver health home health care insurance person with als wheelchair
    • Replies: 21
    • Forum: Current caregivers
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