Hello, I'm a newbie from GA. My brother-in-law was diagnosed about 11 yrs. ago with ALS. My 85 yr. old mother-in-law has been taking care of him for the past 10 yrs. by herself in his home in VA. They recently moved to GA to my mother-in-laws home so that 2 of his brothers and I can help. He...
My mom was diagnosed with Bulbar Palsy ALS five years ago. For several years (3.5) she was pretty good at living alone in her retirement center apartment. For the last 1 1/2 years she has had home health care aides 5.5 hours a day. She is very savvy, has done most of the research about ALS...
Hello,
I am new to the forum. My father was diagnosed with ALS with FTD on January 3,2013.
At the time he was walking, talking, still driving, and working. Since then he has declined at an amazing rate. My mother and I have been able to handle the caregiving until this last week. He is...
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I am at my wits end. My mom and I, due to inability to care for him and lack of financial support or family to help us help my father have had to let my dad go to a nursing home. My strong, vibrant, hilarious bear of a man father is now relegated to being manhandled by nurses that can't wait to...
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So last week Hospice dropped us--guess my poor husband was not dying fast enough. It did not come as a surprise because he is so slow progressing, but still is a blow. They told us 3 days before the service ended. ... :roll:
I spent the week trying to find a home health care agency that I...
Mom was diagnosed at 73 yrs, Jan 2011, she lives in Wis with her 86 yr old husband who has huge balance problems. So yes that is a huge problem! I am her daughter and live in TX. Mom and Stepdad moved into an independent apt, now finally have home health care coming in almost daily. Stepdad...
One year ago today, my husband received his ALS diagnosis. His neurologist stated that there was an 80% chance that it was motor neuron disease and the Emory ALS Clinic confirmed it in April. We lived in our paid off house that we fully expected that we would stay in until our deaths but he...
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It is very difficult to write this post. I am one of the caregivers who has complained about how much ALS changed my life. Well, it has really hit home now. My PALS lost his 2 year 4 month battle on Sunday August 14th. This last week has been filled with all those things associated with...
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Last week we talked to our Home Health nurse about moving from home health care to hospice. My husband's neurologist told us in April that she would support the change whenever we were ready. So we talked with the social worker, listened to the differences in the two agencies and decided it...
This is a lot to get off my chest, so please bare with me! We are living on a teacher's salary and my husband's social security disability. We have 2 kids, ages 11 and 17. Until last year, my husband was receiving long term disability payments from his employer. Last June we were informed...