home health care

A dear friend of mind has recently been diagnosed with ALS. She will have surgery next Friday as she needs help with breathing and will be placed on a ventilator. She just received word that she was approved for SSDI and Medicare. Medicaid was denied. Her husband has insurance (BCBS) through his...

I sent Secretary of the VA an email this morning because our local va hospital has run out of money for home health care and we need it! This was the response:

So i haven't been out the house by myself since June 2015 so the first time I get a chance to get out the house on my own why 2 of my PALS kids come over to the house with the brother, neice, sister and son on the phone without my knowledge to question him about freakin life insurance! UGHHHHHH...

So Tom made it to another ALS clinic visit. I can't help but wonder if it will be his last, his next one is scheduled for October. His decline seems to be gaining momentum, but who knows with this disease. Anyway, I'm wondering if any of you get MIP and MEP tests done along with FVC. Tom's...

After recently moving to AZ and selling my home, I am trying to determine what is best for my permanent residence, move into home or assisted living. I am currently at my brothers home until my mother and we find the best place to go. I know in the future I will need more intensive care and...

Nuts dropped me a note in my profile page to check up on me. I responded but was told that my almost 4,000 word response needed to be trimmed to 1,000 words. So rather than to take the time to trim it... or shorten it... I decided to drop it here so that others could also catch up on us. I...

16 minutes ago My dad has been suffering from ALS the last 2 years. He is now confined to a hospital bed at home. He is on a Trilogy non-invasive ventilator, needs to use his cough assist machine regularly, has to be fed by someone else, and has a catheter so he doesn't have to get up and...

Had my first visit today to try to help with peg tube. Nurse was from hospice and said that she sees survival from diagnosis to death of about 1 year. Not what I wanted to hear:mad: Also took last blood test to rule out any other possibility no matter how remote. Its official, I have ALS. Wife...

First of all, thank you to anyone who takes the time to read this. This is the first time I have ever actually reached out to anyone regarding my fears. I have always just led my family and friends to believe that I understand that I will not get ALS.... To start at the beginning... My mother...

Hello, Thank you all for taking your time and reading this. :) I did read all the "stickies" I could find- and I have been seeing my neurologist (for about 2 months straight since this episode started) I saw him for migraines "before." I was teaching highschool chemistry and physics- and in...