home health care

  1. I

    PEG just put in..what kind?

    Just got out of the hospital after a PEG was put in. Going through forums to see what to expect. You all are talking about all different kinds with buttons, mic, etc. I have no idea what I have! Have no instructions other than to feed 375 mil three times a day. My husband had to go down and...
  2. JimInVA

    Air Compression Calf Massager

    Because of ALS, Darcey's legs often ache or itch. Her left leg, in particular, bothers her the most. She likes for me to push against her shin with the heel of my hand. She says that the pressure just feels good. My daughter has her rabbit staying with us. Darcey likes having the rabbit...
  3. Kristina1

    who should help with this?

    When you are working with interdisciplinary providers, how do you know who should be the one to provide a particular thing? Sorry this is long... My issue currently is with the new PEG tube. When I was discharged from the hospital the case manager said someone would arrive same day at my...
  4. D

    Attention federal employees

    Nowadays it isn't easy to find health plans with no caps on home health coverage, but if you're covered under a federal employee HMO plan, you should check the plan documents to see if it is a "federally qualified" HMO. No limits on the frequency or duration of visits are permitted on home...
  5. D

    Need better care at home? This is what to do

    Send an email to the ALS Association president, Barbara Newhouse, at this address: bnewhouse (at) alsa-national.org This is all you have to say: "Dear Ms. Newhouse, Please make home health care an advocacy priority." Optionally, you can also describe how a PALS has suffered from getting not...
  6. C

    Changes

    So I sold my house where my kids grew up(lots of angry tears there, thank you) and moved to a RANCH. Spending ALL my money renovating this ranch for my family. Putting in a basement apartment for my kids/mom and at some later point a home health care aid if a live-in is necessary. My question...
  7. kitkat

    Who do we start with?

    Steve was diagnosed January 2016. I still work fulltime. We have managed to make things work up until now. I would help him dress and eat before I left for work. If I was not going to be able to go home for lunch, I would leave a cut up sandwich & snacks between paper plates with a small...
  8. J

    Medical Insurance VA & Tricare negotiations for home care

    I am 61 years old and use both tricare & VA for healthcare Is there some advice on how to negotiate the best deal on home health care. My wife is physically not able to do it with her current illness. I am not in need just yet I just want to get a plan together for the future. Thanks in...
  9. P

    ?? could I have it ??

    Gulf War Veteran. left side arm,hand,leg weakness. right side getting weak now. mayo clinic jan 2014 diagnosed spinocerebellum degeneration. drooling, difficulty in projecting voice, twitching mainly left bicep,home health care, with shower, dressing, and food prep. wheelchair bound. dropping...
  10. D

    ALSA’s Advocacy Day and Public Policy Conference

    To all PALS and CALS who have experienced shortfalls in the provision of DME and home health services (meaning, I suspect, all of us), you may be interested in knowing that these huge problems are not on the list of the ALS Association’s priorities for its “Advocacy Day and Public Policy...
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