home care

When PALS is in any stage of ALS and is hospitalized they and their CALS need to assess their ability to request care from staff during the day and night. For example, my PALS hubbie Tom is completely bedridden, cannot speak and cannot use his hands to call for assistance. Therefore the...

We live in a small three bedroom 1927 tudor colonial, that we have lovingly maintained over the 39 years we have lived here. Tom has always loved this old house. We renovated our very scary unfinished basement to put in a playroom for our grandchildren. That was the last home project Tom...

We have a mix of ways that we have help. I thought I'd share them. I'd also be interested in hearing your ideas. For reference, my Dad is mostly immobile now, (diagnosed the end of 2018.) All transfers are with a Hoyer lift. He does get transferred to a commode or his PWC, (mostly if we're...

My Dad was diagnosed in Dec. 2017, with limb onset, starting with his hands / arms. Yesterday evening, he was unable to stand from his lift chair for the first time. My husband and I drove over and were able to get him out of it with the lift, (after a youtube troubleshooting video. It was...

In January my wife and I got the flu even though we both had our flu shots. She spent 3 days in the hospital. Until yesterday we had been unable to get this year's flu shot for my wife because she is bed bound and our home care has stopped. Several contacts including our very goog PImary...

I recently listened to two seminars sponsored in part by the Steve Gleason Foundation. The subject was Medicare-paid custodial care. The basics to qualify are: 1) a patient must be home bound. 2) must require professional medical care such as skilled nursing, speech therapy, or physical...

Hello,all, I am a non related caregiver for a patient who has completely lost use of all extremities, but retains voice and enough ability to swallow. I am emotionally having difficulty dealing with her family and medical care, although I say nothing while working of course. I am simply sad and...

I am beginning to think Brian is going to go a LOT further with this than we previous thought/planned. That is great news in a lot of ways, but also a game changer. Since things at home have thus far been a lot easier to modify than I had thought earlier on, and I am confident we can keep...

My PALS (mom) agreed today that perhaps some part time home help would be agreeable. She lives alone in a big house and is getting exhausted walking around, and wants to be able to go out, but it is getting difficult alone. She's only diagnosed a month ago so this is all happening faster than...

I cannot believe Medicare doesn't cover in-home care for ALS patients. We have just begun research for what it will cost us out of pocket. Is $20/hr through an agency reasonable?