home care

  1. T

    Getting Help, Caregivers

    We have a mix of ways that we have help. I thought I'd share them. I'd also be interested in hearing your ideas. For reference, my Dad is mostly immobile now, (diagnosed the end of 2018.) All transfers are with a Hoyer lift. He does get transferred to a commode or his PWC, (mostly if we're...
  2. T

    Help! Strength: Conserve or Use It or Lose It?

    My Dad was diagnosed in Dec. 2017, with limb onset, starting with his hands / arms. Yesterday evening, he was unable to stand from his lift chair for the first time. My husband and I drove over and were able to get him out of it with the lift, (after a youtube troubleshooting video. It was...
  3. Chincoteaguer

    Flu shots

    In January my wife and I got the flu even though we both had our flu shots. She spent 3 days in the hospital. Until yesterday we had been unable to get this year's flu shot for my wife because she is bed bound and our home care has stopped. Several contacts including our very goog PImary...
  4. O

    Help with daily care may be available through Medicare

    I recently listened to two seminars sponsored in part by the Steve Gleason Foundation. The subject was Medicare-paid custodial care. The basics to qualify are: 1) a patient must be home bound. 2) must require professional medical care such as skilled nursing, speech therapy, or physical...
  5. S

    Insurance woes

    Hello,all, I am a non related caregiver for a patient who has completely lost use of all extremities, but retains voice and enough ability to swallow. I am emotionally having difficulty dealing with her family and medical care, although I say nothing while working of course. I am simply sad and...
  6. Lkaibel

    Game Changer

    I am beginning to think Brian is going to go a LOT further with this than we previous thought/planned. That is great news in a lot of ways, but also a game changer. Since things at home have thus far been a lot easier to modify than I had thought earlier on, and I am confident we can keep...
  7. A

    Looking into home help

    My PALS (mom) agreed today that perhaps some part time home help would be agreeable. She lives alone in a big house and is getting exhausted walking around, and wants to be able to go out, but it is getting difficult alone. She's only diagnosed a month ago so this is all happening faster than...
  8. P

    In-home care

    I cannot believe Medicare doesn't cover in-home care for ALS patients. We have just begun research for what it will cost us out of pocket. Is $20/hr through an agency reasonable?
  9. T

    Can't find Homecare that's supplemental for Medicare.. Suggestions needed!!

    My father in law was diagnosed with familial ALS in April of this year (3rd generation to suffer from this horrible disease) and he recently lost his ability to walk. He's now in a power wheelchair and they are going to be getting a hospital bed for him soon so he's more comfortable at home...
  10. D

    Attention federal employees

    Nowadays it isn't easy to find health plans with no caps on home health coverage, but if you're covered under a federal employee HMO plan, you should check the plan documents to see if it is a "federally qualified" HMO. No limits on the frequency or duration of visits are permitted on home...