holiday

  1. S

    Some help required

    Dear all I'm in a really tough spot and have been for about 3 months. Please can I run my symptoms by you to see if anyone can relate to my condition and progress. I have felt a bit off since the beginning of the year like a growing fatigue, but I put this down to having a 1 year old (now...
  2. B

    Awaiting diagnosis

    Hello everyone, introducing myself here and seeing if anyone here can offer some help. I'm in desperate need. I'm a 34 yr Male. I apologise in advance for the long post. Things started around 3 weeks ago while I was away on holiday. I felt that my right hand was strange, and unable to...
  3. I

    Is bulbar possible?

    Hi! Please be kind to me, I'm scared and I'm trying to receive help from our local hospital but they won't do much. So lately I've been having some difficulties with pronouncing some consonants, for example three days in a row I've hade problems with saying words with L and R. I was saying the...
  4. J

    Bulbar Onset Diagnosis

    My husband finally had his diagnosis of Bulbar Onset confirmed last week and we are naturally devastated. Whilst he wants to know nothing about what might come next and when, I feel i really want to know everything and need to know what to expect. I have read many posts on here and everyone is...
  5. C

    first holiday-how?

    My sister was diagnosed about a year ago. We had a family reunion this summer, while she could still communicate yes/no, and her facial expressions helped us read her. Her ALS has taken over her upper region and she can no longer eat, speak, or show facial emotions. She has a feeding tube and...
  6. P

    Happy Holidays

    Happy Holidays cals n pals. Stay warm, Pat
  7. Nikki J

    Happy Hanukkah

    To our members who celebrate. Wishing you a wonderful holiday!
  8. A

    Holidays and ALS

    Hi everyone. This is our first Holiday Season with ALS. My Dad was diagnosed Jan 20th unofficially, Dr. didn't tell my Dad until June 9th, worst day of our lives. We are all trying to stay positive this holiday season and make everything as normal as possible. It's hard with all the changes...
  9. J

    Super Scared and Afraid

    Hi All, First off I want to send my thoughts and prayers to all of you on this forum that are suffering from ALS and to all of you that are CALS and have lost a loved one! I was hoping you all could offer some insight and some guidance on what I should do, since you live it on a daily basis...
  10. Nikki J

    Another calling all PALS thread! ( PALS only post please)

    The other one closed and it is time to chat again! Can't believe it is almost Christmas with 2017 close behind! This is a challenging holiday season for us as it is the first without my sister but I am looking forward to the New Year. We have a new nephew/niece coming from an inlaw which is...
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