I received a note today from my cousin (a pathologist). The following was sent to him by a friend whose wife has ALS.
Leslie has been taking experimental drugs which are generally based on the attached. The gentlemen who patented these drugs is a microbiologist from Clemson who has been...
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Hi everyone,
I have reading an gaining information from this forum since August last year and have now felt a little braver to write. My heart goes out to everyone on this forum.
I have had really strange symptoms since May of last year.
June i awoke with pain in my right shoulder. Went to...
New gene therapy halts 2 boys' rare brain disease
By LAURAN NEERGAARD, AP Medical Writer – Thu Nov 5, 5:12 pm ET
WASHINGTON – French scientists mixed gene therapy and bone marrow transplants in two boys to seemingly halt a brain disease that can kill by adolescence. The surprise ingredient...
Hi,
I had encounter with CSW 3 1/2 months ago. I got some infection not diagonised yet. I took doxycline for 2 weeks which reduced my testosterone. I then took testogel for 2 weeks, after 4 weeks encounter. At week 5 of encounter I started to get intense Muscle Twitching (fasciculations) with...
So let's say that one day you went to the bank and discovered that someone had been taking money out of your account without your knowledge or permission. What would you do? Would you keep putting money into the account to stay ahead of the thief? No, you would try to find out why and how the...
Hi everyone,
I have posted a few times here and have found the responses to be quite helpful, so thank you very much.
I wanted to post a fuller picture of the symptoms I have been experiencing to get some advice (and maybe even some clarity) because my ALS fears are gradually becoming an...
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Hey Everyone,
I finally went to my first session at an ALS Center, and I came away with very mixed feelings. The people were very nice, and most gave me a lot of info. It was when the staff Nuerologist came in that I now feel a little lost. I was diagnosed May 1st 2009, and at that time it...
Hello everyone,
I posted a thread on this forum a few months ago because I experienced a strange neurological condition that several drs have yet to diagnosed. Thus far, I've had drs mention Lyme disease, Guillen Barre syndrome, ciguatera poisoning, and, yes, ALS as a possible diagnosed. My...
Hi I'm new here. My name is Tim and I'm from NYC. I'm a heretofore youthful and energetic 60 yo man. I do have and have had essential tremors for years in my left hand. I also crack my neck and lot and usually have neck pain and stiffness. The cracking also makes my face and fingers go a...
als?
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Well it all started with blood after playing footbal i went to WC and i had blood in urine, i went to ER because i also have taken tetanus vacine one week early and i had already urinated blood when i took hepatites vacine 8 years ago, at the er they took me blood all normal and urine (red) was...
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