hiv

  1. Sequoia

    Let's all ask Biogen to Treat Us Now!

    hello every body! I am amazed that the new treatment Dex. has been around for over 14 years! From phase I to now phase III which won't finish until next December. I am losing muscle in legs, arms, hands, effecting my swallowing, speech, and now breathing. We know how this goes, and it goes...
  2. A

    Does this sound like ALS?

    Hi, I'm a 20 year old male and for the past 7 months I've been dealing with very weird, scary symptoms/sensations in my body. I'll list everything I can from the start to finish. Back in May it started with twitching in fingers, persistent stabbing/shooting pain in throat muscles, and "warm"...
  3. L

    Twenty and Concerned it May be ALS

    I am twenty years old and live in Sydney, Australia. I have been having a bad year in terms of illness. I have been hospitalised with possible meningitis, have been on a protracted course of PEP for suspected HIV transmission (now largely resolved with a test appearing negative), and have had...
  4. S

    PLS Symptoms?

    Hi Everyone, I'm very concerned with some the symptoms I've been experiencing over the last few months. I've been tested for HIV, been to ENT, had blood done for CBC and thyroid, and so far everything has come back normal, except the ENT said I have inflammation in my throat. About 3 months...
  5. S

    Having Als symptoms

    Hi Everyone, I'm very concerned with some the symptoms I've been experiencing over the last few months. I've been tested for HIV, been to ENT, had blood done for CBC and thyroid, and so far everything has come back normal, except the ENT said I have inflammation in my throat. About 3 months...
  6. M

    another undiagnosed predicament

    Hi there, I'm really hoping you guys can give me some advice on a couple things. I know you aren't doctors, but I know there is a lot of experience here. I won't bore you with the details of the past 8 months, but basically I have abnormal emgs, ncvs, and spinal tap. All of which the doctors...
  7. S

    Dexpramiprexole - just disqualified...more concerned

    I have been reading posts since December of 2010 and have just now gathered the strength to become a participant. I am hear as I have a family member who was diagnosed with ALS seven months ago. His doctor - who runs the ALS Clinic was very excited about his participation in the new Phase 111...
  8. notme

    Got this email today

    Dear Patricia, Yesterday afternoon, the House Appropriations Committee approved $6.4 million for the ALS Research Program at the Department of Defense. Thank you to everyone who reached out to Congress to help save the program from elimination. Your outreach made a difference and helped...
  9. jaws

    Recently diagnosed

    Hi, I've been lurking for some time, and set up an account last month. Though I'd hoped to be able to leave this forum as a scary side note in my life, as of this morning, that's unfortunately not an option for me. :sad: Backing up a bit: last summer, I found myself unable to clip my nails...
  10. T

    help with my symptoms please

    Hello all ok try to keep it short 1 year ago started getting alot of occular migraines and dizziness pretty bad dizziness then about 2 or three months later I got a intermittent buzzing feeling in back of left calf buzz pause buzz pause on and on for 7 days straight then I started getting tiny...
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