helpful

  1. G

    Polls

    Is it possible to add a "poll" feature for posts when this would be helpful? Some forums I visit have this. It allows for readers to respond to questions with multiple choice answers, and provides a summary of the answers.
  2. H

    ALS Symptoms - worried

    Hi, I am new to this forum. I’m going to try keeping this short. I am 29 years old and since the beginning of August I’ve been experiencing weakness/tightness in my right leg. It was mild then, but has gotten worse over the couple months. Sometimes I want to pull my leg because of weird...
  3. N

    lurking CALS

    Hi, I'm Nikki. My husband was diagnosed with ALS last December. I have spent the last year lurking on this site and finally feel like I am getting to the point where I may want to start asking questions. My husband Colin is 51. I am 36 and I have a 9 and 11 year old whom he is stepdad to. He has...
  4. affected

    Cognitive and Behavioural effects higher than we used to be told

    I found this article helpful to me. For CALS, dealing with cognitive and behavioural changes is so very difficult, especially as the PALS does not recognise that changes are happening. To see research is revealing the incidence of changes is far higher than we were being told 10 and even just...
  5. KarenNWendyn

    Adaptive nail clippers

    I found this type of device helpful for clipping nails when pinch strength is weak. It would also work well for people with arthritis in their fingers. Mod note: Sry! :-( Commercial link deleted. Do Google search for "Mounted Nail Clippers".
  6. A

    Healthy Anxiety - Thank You

    Hello, I have been on this forum for some time now, but I recently just joined. I know I suffer from health anxiety, a panic disorder, and long before everything else general anxiety. I recently lost 3 loved ones this year, but death isn't new to me. One of my uncles died of complications in his...
  7. K

    Flu Shot

    Hello everyone! This is my first post since my husband was diagnosed with ALS in January 2018. I have read many threads and your posts have been so helpful. I have a question about flu shots. My husband is only 59 but realized yesterday that there are "stronger" flu shots for people over 65...
  8. R

    Constant Body Wide Muscle Twitching + Weakness in opening fist

    Hello, First of all thank you for taking your time to open this thread. I am indebted to all of you and I wish for your health ! Before three months, I noticed some small twitching on my foot & other parts of body. They were indeed small and didn't vibrate that much such that it becomes very...
  9. Doglady

    New-ish Diagnosis

    Hi- I’m new here and was diagnosed 4 months ago. My symptoms started a year earlier! Started with falls then foot drop. Also cramps and fasiculations. It was terrible at first but I’m adjusting now. My ALS clinic is great and the local ALS Association couldn’t be more helpful. I’m on Riluzole...
  10. I

    How to change Bipap settings as for the disease progress?

    Dear PALS, hope you the bests. I started Bipap 1 year ago for my patient with below settings: mode: ST IPAP: 12.0 EPAP: 5.0 IBR: on Target pt Rate: 14 Trigger: high (i dont know what is this) Cycle: Med (i dont know what is this) Ti max: 2.0 sec (i dont know what is this) Ti min: 0.3 sec...
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