helpful

It was a bit of a dis-appointment. As in, he had no magic anti-spasticity, anti-fatigue bullet. But it was also reassuring in a strange way. The physiatrist himself was wonderful, but he did not have the answers I was looking for. My goal was to find a way to reduce night time spasticity and...

Quite awhile back, our dear Max started a thread about some of the best adaptive equipment and gadgets. Since technology has changed in the last 18 months or so, I thought it might be a good idea to revive the thread. We have several gadgets that have really made our lives easier and they...

I had in the past mentioned that Alka-Seltzer had all but removed my Phlegm issues. This continues to be true and I highly recommend it. It was unbearable before I started the daily regiment and now is virtually unnoticeable. A note on this is that it does not work instantly it seems to take a...

We all have been way too quiet! I know it is hard for many to post and many of us have been struggling physically and/or emotionally. What have you all been doing? I was lucky to have a trip already planned before my sister's death and last month was able to spend 2 weeks with our cousins...

What kind of systems do you find helpful for record keeping? Do you have an accordian folder that you carry with you? File cabinet at home? I just know a bunch of paperwork is going to be thrown our way and my OCD brain is in over drive

So I wanted to post this because I've been hearing about and reading about detoxing as a way to slow progression. On the site healingals.org there are a number of stories of PALS who claim to have reversed als. I don't know how many of those have a validated dx, although I do know that after...

I have some symptoms that are really worrying me, so at the risk of looking like a fool, I'm going to ask for opinions. I will be calling to schedule a neuro appt. this week regardless because something is certainly amiss. I apologize for this being long, but I feel like some of the background...

Since I first posted on this site I have had so much helpful and useful information. I thank all of the moderators for all of your patience understanding blunt but true words and suggestions. My last postings were about my frustration with the care I was receiving. I asked the very questions...

my mattress has been beating me up since october it is an adjustable bed, feet and head are adjustable. i am thinking about getting an alternating air over lay and / or sheep skin, or possibly memory foam i have read DianeH mention. any recommendations or suggestions might be helpful...

Well because of long wait time for aide in house care it was suggested to start hospice by my va nurse. It would speed up getting help and she reminded me that hospice is about making people comfortable . So getting past stigma of hospice/ death we are now on hospice and they are really good...