helpful

(Sorry i first posted it by error in the general feed) Hello everyone, first of all thank you for everyone contributing to this forum because I find it quite helpful to read about individual experiences. I am writing here as I have been experiencing different health problems for a while...

Hi first time on this forum. Seamus from Ireland diagnosed1year but symptoms about 4 years, 49 married 4 kids. What I would like to ask people is about Edaravone. It has been in use in the US since 2017. It is not available in Europe yet but there is a large clinical trial this year on the oral...

Since the joke threads haven’t been quite as active lately, I find it helpful to read through old joke threads. Classics are still classics. This one (which was originally submitted by Clamdigger) remains one of my favorites, and I have gotten a lot of mileage out of it sharing it with...

Hello all! It's certainly great to be a part of this group of experts - and I do appreciate all the helpful advice I've received and read in past messages on various topics. The knowledge and wisdom here is awesome and I've learned a lot! So, where else would I go when I can't figure...

My Pals started a downward spiral 30 days ago. Could no longer talk, appetite diminished, slept 14-15 hours at night and often a long nap in the afternoon. I asked twice if she wanted our granddaughters to come decorate for Christmas and never got a response. I had them cone out anyway and she...

Hi, I asked a single question lat month and was satisfied with the response as I felt it was helpful and very much appreciated. I just have two quick questions maybe someone can answer for me. Are hyper reflexes usually an early presentation or after weakness? secondly is cramping a late stage...

Hello, I was not sure whether to make a new post or to post on a previous one on teens, but I think that living away changes the experience quite a lot so I figured it would be helpful to open a new thread. As some of you know, my father was diagnosed with PLS. I am from Spain, where he still...

Being a teenager these days under normal circumstance is hard enough (for example, I have a senior and we are in the throes of college acceptances/rejections/etc.), but add having a parent with ALS to it.... Aside from therapy, what has worked for your kids? Does a forum like this exist for...

Hello all, First of all wanted to say that my heart goes out to everyone who is dealing with this, and to those who take precious time out of their day to help others here. I'm a 31 year old male. I've been dealing with serious health worries for the past 3 months, and just to go through...

Bob Stansbury, also known as WheresWaldo, passed on July 22, 2018. He and his wife, Therese, were members of the ALS Support Group in Chico. I met Bob through this forum and we realized the connection during a Support Group meeting. He was diagnosed years ago but remained upbeat and very...