help!

  1. L

    Just found out my birth family suffers from C9 gene mutation. Please help!

    Hi, I was adopted when I was young and did not know my full medical history. I just discovered that the C9 mutation runs in my family. Over the last 4 years, 3 people have died from this - my uncle and aunt from ALS and my mom from FTD. I am unsure if anyone else is currently affected in my very...
  2. dkcarl62

    Happy baclofen pump users – need your help!

    I have clinic soon and I know the issue of a baclofen pump is going to come up again. I believe they offer the pump to all with PLS, but I believe it is more helpful to some than others. So I’m doing my research to find the ideal model for a successful pump installation. Will you take a...
  3. dkcarl62

    Happy baclofen pump users – need your help!

    I have clinic soon and I know the issue of a baclofen pump is going to come up again. I believe they offer the pump to all with PLS, but I believe it is more helpful to some than others. So I’m doing my research to find the ideal model for a successful pump installation. Will you take a...
  4. J

    Getting confusing info about ALS...please help

    Hello, I'm a 38 year old female. About a month ago I started experiencing body-wide twitching. Most of it is located in my back, but almost every part of my body has experienced some twitching. I also have a great deal of body-wide muscle pain, not cramping but just constant soreness (like I've...
  5. S

    FAMIAL als ! Yikes! Help!!

    Hello I am 25 and lost my uncle to als last year he passed away at 50 years of age with als the same with his mother and his grandmother as well all with als. We have just found out it is in our family 100%. I am now worried although i know it mostly strikes at an older age i am having trouble...
  6. N

    BiPap mask for a bulbar onset patient?

    Hi Everyone, My father started with a BiPap machine last week, and it doesn't seem to work. He is bulbar onset, and right now can't keep his mouth closed other than by holding it with his hands, which he can still do, but it's not easy even now (and his hands are weakening). He has to press...
  7. T

    Doc said weakness in one leg, spread to other leg right after. Help!

    Hello everyone, I have been going through some of the symptoms for early onset ALS for the past two weeks or so and I am terrified. I have read through the stickied threads at the top of this forum and I am still convinced that I may have some form of ALS/MND. The first signs were an...
  8. M

    Terrified; please help!

    Hi everyone, I'll try to be brief as I am very upset right now and my wording will probably be jumbled (also, not native English speaker). So, I'm 25, female and about 2-3 weeks ago, I started noticing muscle twitches in my right calf. Eventually, I would notice them somewhere else but the...
  9. A

    Any Ideas??

    I'm trying to figure out who to turn to if none of my symptoms appear to be ALS. Please check my history below. If you have a recommendation or another forum, please share. I do see my neuro again on August 10. We will be discussing meds. March 2011 -Electric Nerve pain in feet and hands...
  10. M

    Twitching in right pinky finger:numb tingling in both hands. Help!!

    I'm 23 and I'm a female. Overall healthy, no diagnoses of anything. About 3 years ago I noticed a twitch in my right pinky finger. It has been on and off since. Sometimes it will do it all day for weeks then I'll go a few days without noticing it, then it's back again. I've also noticed...
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