help!

Dear ALS Community, I appreciate this website as it offers people who are curious (like me) and opportunity to receive insight and answers from people who have actually experienced ALS or know people who have cared for those who have. I was hoping to share some of my symptoms and see if...

I am new here. Very scared and need some wisdom. I am a 35 year old female with a 41/2 year old daughter and a 4 month old son. I've been through a lot this past year, but I'll make a long story short... I have significant quadricep atrophy in my left thigh that I noticed about a year ago...

Have any other CALS experienced an "emotional distancing" by their PALS early on in this process? I've noticed my Hubby spending more and more time in his workshop/man-cave. He's been hanging out there almost every evening, watching TV, playing with his fishing stuff and generally seeming to...

I couldn't believe my son felt compelled to say that to me! My husband tried to get out of bed by himself last night. My son and I were watching a show in the LR and the bedroom door is right behind the LR. He never called out for help and the TV was not loud. The door was closed so he could...

ok so this is very frusturating. Mom is on medicade, but shes still on stepdads insurance, who works for the govt. From what i understand either most places say he makes too much money to do payscale or other options or i really dont know wtf the problem is (excuse the french but everyone in my...

My husband and I will be going to India for stem cell therapy. we leave next week. as many of you have probably found, waiting for the US to get caught up and help us is just taking to long. We have 2 children Jason wants to see grow up, walk our daughter down the aisle, give our son...

My question. My boyfriend 42 yrs old has had difficulty with speech x 10 mnths. Dx as spastic dysarthria. He has had 2 EMG which were normal. All reflexes normal. neg babinski. 5/5 muscle strength. balance/coordination WNL No other signs of UMN. No LMN involvement. Could it still be ALS? No...

I know this subject has been discussed in the past, but not recently. The most recent thread I can find is over 2 years old. Here goes... My mom is 50 and was given a preliminary diagnosis of ALS about a month ago. She's fading fast. She can still eat and walk on her own, but she's beginning to...

Hello, I'm new to this forum and I apologize because I have not been diagnosed with ALS. However, I'm dealing with intense anxiety and was hoping to get some information. About 2 months ago, I noticed continuous fasciculations in my right calf. Two weeks later, it was in both calves. Non...

Lately I've been wiping my PALS behind on the toilet. Soon I know I'll be brushing her teeth and feeding her. I wonder how we're going to care for her when her arms and neck become totally limp. We want to stay at home-no hospital, no vent, no tubes. What shall I plan for? Background: My wife...