help!

  1. cubcake

    Question about exercise

    Hi there! It has been recommended that my husband begin to perform certain strengthening exercises to help him strengthen his hips and legs to prevent some falls. I've had the understanding that stretching exercises can be good but that strengthening exercises can contribute to further decline...
  2. M

    Help!

    My husband was diagnosed with lower motor neuron disease exactly a year ago, about 4 months ago it was changed to ALS....however now there are two diseases...ALS and drug addiction....He has been taking tons and I mean tons of pain meds...morphine, larazopam and oxycodin....he says he has to...
  3. A

    peg feeding

    :cry::cry: my mom just got the peg in on tuesday 9/4 (her bday), she has been fine up untill today she has had 2 major diareahs, is this normal or should i contact the doctor...HELP!
  4. skipper66

    Breathing issues please help!

    My dad is in Dallas and I'm here in Illinois. He called today and said he went to the ALS clinic today. He didn't know what they called it but they gave him a mask to use at night to help with his breathing. Is this what they call a Bi-pap machine. Does this mean he is going downhill faster or...
  5. F

    how to delete a post and deactivate an account?

    Hi I can't find how to delte a topic i had started;or even just one message, is there a way to do it? because in that post its easy to find who i am and i got some nasty messages from the internet... thanks for your help. Also how do we deactivate our accounts in here? not that I want to do it...
  6. N

    Hereditary FTD and ALS

    Hi there- really struggling to ask this question as I prefer not to know but it will influence my decision to have children. My mom passed last away last August from ALS with FTD. My family history on her side is not great as they werent a close family, but neither of my grandparents had it and...
  7. L

    In limbo....MMN or motor neurone disease...HELP!

    Hello everyone, I'm very new to all this so forgive me if I get any of the terminology wrong. I've been reading your posts for a little while and would really value and advice or support you may have... :) I'm finding things very hard at the moment.... My dad was diagnosed with multifocal...
  8. K

    ALS clinic? Help!

    Hi everyone, I had posted a couple of weeks ago concerning our neighbor/friend, my husband has been bringing him to his appointments and I had gotten some misinformation, I apologize for that, but I have the whole story now, so hoping for some insight here. He was seeing his first neuro, who...
  9. K

    No Support group or support at home how do you do it?

    Hi guys, my partner was diagnosed with ALS almost 4 years ago. It was slow moving in the beginning but has really progressed in the last year. Forcing him to a wheel chair full time. His attitude towards others has went down hill, it is becoming a lot to take... He has two teenage (19 & 16)...
  10. B

    Bereavement Camp

    Without going into the details, my son has reached out to me and asked for help in dealing with his father's death. He has been steadfast in refusing counseling, until this week when he broke down to tell me he needed help. He is 11, soon to be 12. The hospice facility participates in a camp...
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