health

  1. kitkat

    Choices

    My PALS finally received his PWC a couple weeks ago. He should have received it almost a year ago, but miscommunications & ball dropping happened. It is set up with a head array so he can drive it, and a joystick in the back so I can drive it. Unfortunately, his neck has gotten so weak, he is...
  2. D

    Worried

    Hey everyone, thanks for reading. I am a 24 year old girl, no family history of ALS. I KNOW that I have health anxiety but I can’t seem to shake the idea that what I’m experiencing might be ALS. So two weeks ago I was home and my finger was twitching. Naturally I panicked and googled and ALS...
  3. M

    Update from doc

    Hi Guys, So I finally had my doctors appt today. She had no concerns whatsoever , she didn’t even refer me to a neuro . All she did was a neuro exam and I passed fine . She also ordered blood work but said that looking at my health I should be absolutely fine and she has no worries about ALS or...
  4. T

    Stressed and worried over symptoms

    Hello All, Over the past month I have had some crazy stuff happen to me that really has me stressed out and terrified. Let me start by saying that I have always been an anxious, worrying person but it hasn’t really had any impact on my physical health (at least until this last month). I am just...
  5. M

    Quick question

    Hi guys, me Again. Just a real quick question . I am 20 , like I said before vodywide twitching for 4 months or so now. (No weakness ) At night the twitching settles into my legs , is this worrisome ? They go all over my thigh , buttocks , calves , especially at night when I’m at rest . It’s...
  6. B

    Concerned about ALS

    (Sorry i first posted it by error in the general feed) Hello everyone, first of all thank you for everyone contributing to this forum because I find it quite helpful to read about individual experiences. I am writing here as I have been experiencing different health problems for a while...
  7. B

    Still concerned, but should I be?

    33 year old male. Obese. Office job. I have always had some health anxiety, let's start there. My main anxiety throughout my adult life has been colon cancer, which comes from my symptoms of IBS and GERD. Back in April I had a gastro event, and it ramped up my anxiety. Afterwards I started...
  8. I

    Drugs and PT for PBP?

    I was diagnosed with PBP a year ago this week. I frequently check in and read most of the posts for the day. It just dawned on my husband and I that none of the four neurologists I have seen have mentioned physical therapy or drugs that might delay the progression of this beast. Until about...
  9. A

    Back after 5 years... still worried

    In 2012 fasciculations started. I also have pin and needles and some other little things. Went to the neurologist, he did some tests and diagnosed me with BFS. Slowly my worries disappeared and I went on with my live. I'm 42 years old now and a mum of 4 kids. But... since 2014 I got some...
  10. K

    Why We're Here...

    Hi all, Just wanted to underline how grateful I am for this forum. This morning, Mum had her first really rattling experience with trouble breathing, a series of spasms that wouldn't allow her to get her breath. Because of how PALS and CALS share their experiences here, and I've been reading...
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