My PALS finally received his PWC a couple weeks ago. He should have received it almost a year ago, but miscommunications & ball dropping happened. It is set up with a head array so he can drive it, and a joystick in the back so I can drive it. Unfortunately, his neck has gotten so weak, he is...
Have read guide to vet's benefits re homemaker/home heath aid. What VA dept. handles this program? My parttime VA neurologist has forwarded a request but no response todate (threeweeks ago). My unfortunate spouse (and caretaker) suffered a severe broken leg and cant put weight on her leg for...
Me and my PALS live in FL. I hired a home health agency to send someone for 2 hrs on days I work (once or twice a week at the most). I have found on most occasions they either don't show up or are late. This is ridiculous. Is this common with home health aides? Most of them have unreliable cars...
Update on my mom, she continues to decline quickly. She is now exclusively in a wheelchair as she can no longer use the rollator. She has a home health aid that comes in two times a week for two hours in the mornings but home health aids are expensive. My mom doesn't qualify for palliative or...
Hi wonderful CALS. I know I don't belong here as a PALS but I just have to get your opinions as they are the only ones that count on this subject.
My wife and I have been married 31 years. We had a rough patch for a couple of years around our 15th anniversary but it was all worked out. No...
So here's the lowdown. Last year my husband bought me airline tickets to see a dear friend of mine who has a home in Ireland and will be there on July 12. He was independently able to transfer at the time he bought the tickets. By April of this year, it was clear that he would need more...
Steve has lost a lot of ability with his hands. When he does use them they cramp terribly. I have gotten him burritos and frozen dinners he likes, left him sandwiches etc because he does get up a couple hours before I get home and wants food. These packages are getting too difficult to open...
I just wanted to pass the information along of an amazing home health aid who helped my father and our family while we were battling with ALS. He is one of the most kindest, compassionate, and caring individuals. He helped my father during the hardest time and I cannot refer someone more highly...
Hi all. My sister and I are both members of the ALS forums and are helping currently with caregiving for our father who has ALS/FTD. He was diagnosed in January 2013 and has declined to the point of not being able to get in or out of bed, shower, or go to the bathroom without assistance. He...
I don' t post much here but I read often. My MIL is suffering with bulbar onset ALS. She is only 59. She is declining rapidly and I think my husband and his siblings are in denial. I try to tell him they all need to talk about her wishes with her so we knwo what she wants but it...