headaches

  1. notme

    Pulmonology Visit

    Not good. FCV is low. O2 sats are in the 80's. They sent me home with an order for oxygen use at home. He said he's sticking with the c-pap for now with added oxygen--pending results of AGBs and CT of chest. Will change it to bi-pap if the ABGs suggest I need it. The walking for 6 minutes...
  2. notme

    Sleep Study Results

    Sleep study results weren't good. I have to go back tonight for a second study--this time with CPap. Apparently I stop breathing quite frequently, which is likely causing the daily headaches. They couldn't tell me, though, if the low O2 sats were from the lungs or from the muscles...
  3. Karvorka

    Bipaps..

    Ok here's my question, I was diagnosed with bulbar onset over 3 years ago and the first specialist my neurologist sent me to see after my diagnosis was secondly and thirdly comfirmed was a respiratory and sleep specialist (I assume because people with bulbar onset have a higher prevalence of...
  4. notme

    3 hour neuro appt

    Spent 3 hours with the neuro the crap insurance sent me to. They had told me the Emg/ncv was approved....it wasn't. I sat for an hour and a half after his exam--because he said it's imperative that an EMG/NCV be done this week--and he also says I need biopsies. He wanted EMG/NCVs approved...
  5. T

    More symptoms occuring, can ALS progress this fast?

    Hey all hope everyone's feeling better than myself... So my initial complaints I posted seem to have been progressively worsening... I'm a realist and at this point am pretty much coming to terms with the fact that it is very possible I could be suffering from ALS.. I've been in denial about...
  6. D

    Als

    Hey everyone this is my first post and I am curious as to what the specific symptoms of ALS consist of. Obviously the reason I am asking is because I fear that I may have this horrific disease, so that being said I will try to be as specific as possible when it comes to the symptoms that I...
  7. B

    Need to know what I'm up against

    I'm currently extremely stressed out about what my diagnosis will turn out to be but I know something's going on.... A little about me: 24/f For the past 2,3 years (but much worse recently) I've been suffering from extreme fatigue (physically & mentally), brain fog, hair loss, dull headaches...
  8. twinmommie72

    Headaches

    Hi everyone...I've had a headache the past two nights. Body is kind of achy as well. I just had the peg tube placed 2 weeks ago tomorrow. Ive not had these headaches before. Anyone have the same problem? Oh how I wish this would go away. ALS....GO AWAY
  9. 2

    What's going on? Respiratory/PBP?

    I need to post here because i am having some more problems. My main issues are my swallowing and my breathing. Just turned 29 two weeks ago. Symptoms. >Feel short of breath a lot of the time. >Chest pains for about a month. >Feel as if something is stuck in my throat. >Occasional Leg cramps...
  10. C

    Could this be ALS?

    Hi everyone, I'm new to this forum and would like to post a list of symptoms that I've experienced recently. Thanks to anyone in advance who could help shed some light on this :) Okay, in the last 3 months I've had a wide range of sensory and seemingly neurological symptoms. This list is...
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