Age: 25
Ethnicity: Caucasian
Self-Symptoms (up-to 4 months):
- Pins needles (although occuring less recently), especially when something is digging into nerve higher up the limb. Of course this is natural, but the effect is much more pronounced than in the past. First symptom noticed (although...
Hi all, hope you're all feeling ok. My Mother was diagnosed as having MND today (or they're 98% sure at least) and although we suspected it for some months, it's still a horrible shock. The doctor said that a scan on her brain showed no abnormalities, but I thought MND didn't manifest itself in...
I am wondering how many people are still working with fairly advanced ALS. My example would be Stephen Hawking. He is basically completely disabled yet he holds a job and has aides to assist him.
It seems like there are jobs that could be performed with fairly advanced ALS. I write software...
Hello, I am a Canadian who has been living in Sweden for many years.
I have lived with MND for over a year now and have received excellent service from both the doctors who made the diagnosis and the ALS team that has supported me after that diagnosis was made.
My main question is regarding my...
als
bipap
bulbar
canada
communication
diagnosis
euthanasia
eye
hawking
health
hope
life
mnd
muscles
neurologist
phlegm
professor
quality of life
research
respiratory
risk
suction
symptoms
technology
tracheotomy
treatment
work
wrong
Hi Guys,
I'm 21 years old, and about a year ago, I noticed that my tongue isn't as nimble as before. I was never a great speaker (I used to stutter a little bit), but I never had a problem with my tongue and other facial muscles associated with speaking. Now, my face feels a bit sore if I talk...
I am still researching whether or not to go to a ventilator when I need one. However, I just got out of the hospital after a 4 day stay due to a high cpk count of 1450, and my kidneys were shuting down. I had no urine all night before I went into the hospital. So I may not reach the point of...
als
breathing
caregivers
chair
children
clinic
cure
diagnosis
diaphragm
disability
dying
family
hawking
hearing
helpful
hope
life
medical
muscles
music
neurology
night
power
power chair
problems
quality of life
speech
stephen hawking
symptoms
taste
technology
tracheostomy
travel
trip
ventilator
wanted
work