guilt

  1. JennyC

    Guilt

    How do youu all deal with taking time for yourselves? I am not my moms main caregiver and she is still fairly independent right now although she has moved in with my aunt. I go down each week either for the day or overnight and hang out with her. My gram is also having health issues as I am...
  2. E

    The End

    Hello. I've lurked here on the forum since my mother's initial diagnosis in early January. That initial diagnosis was followed by a confirmation at our local ALS Clinic three weeks later. My mother has had significant health problems since 2002, so while she experienced symptoms for many...
  3. E

    Worried about a friend who's wife has ALS

    Hello, I have a friend who is the major caregiver to his wife that has ALS. The husband is going to be 67, has a bad back and also is in need of knee surgery. His wife was diagnosed with ALS in September of last year, however her current condition seems as if she is in a stage where her ALS is...
  4. J

    Stressed Out

    My PALS is bulbar---no speech at all, no use of right arm, limited of left arm and can walk with some assistance. I have hit a wall with what it takes to get her in bed and comfortable sitting. Long before her ALS she had hard time getting comfortable. She spends a lot of time on love seat...
  5. A

    Any advice with teenagers.

    Alana here, We have two teenagers, daughter is 15, son is 14. My husband has ALS. We did the general talk with them about what ALS is and honestly told them we don't know if this is going to be a slow/short process for Dad. They are typical teenagers who don't want to help around house...
  6. Lynda

    New to the forum and ALS

    Hi everyone, my name is Lynda. My husband has been recently diagnosed with ALS, although we believe his symptoms actually started slow and steady a few years ago. I am watching him go through the various stages of this disease emotionally and physically and it tears me apart. I tried my best...
  7. maryhahnward

    Dis-spelling the 5 Stages of Grief

    The 5 Stages of Grief and Other Lies That Don't Help Anyone The stages of grief were developed by Elisabeth Kubler-Ross over 30 years ago, as she listened to and observed people living with terminal diagnoses. Since the publication of her book On Death and Dying, the "stages of grief," as they...
  8. Prohobo

    Guilt

    I can't help but feeling guilty - massively so. We were so late in finding the diagnosis - even after 3 neurologist. It progressed so fast and I was blinded to anything serious. As it progressed quickly I was foiled at every turn: Took time to get certain meds, time to get a peg tube, time to...
  9. R

    Info for patients to understanding caregiver needs

    We are living with PLS. Has anyone come across helpful material for patients to understand how the diagnosis also impacts the caregiver? Our loved one was diagnosed several years ago and is angry that the primary caregiver is suffering (also feels immense guilt that their condition is the cause.)
  10. smoochiegal

    What would YOU do?

    Hello, my friends. I would love insight, opinions and suggestions. Last June, before my husband was diagnosed with ALS, my parents decided they wanted to take the the whole family on a cruise. 22 people in all, kids, grandkids and all. My husband was not planning on going with us as he didn't...
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