guilt

  1. K

    Exhausted & Feeling Guilty

    I am so exhausted. We have home health aids taking care of my PALS on weekdays as I still work full time. He has no use of his arms & legs. I get home about 5:15, just in time to help Steve use his urinal. Then I use the lift to get him out of his hospital bed & transfer him to his wheelchair so...
  2. Q

    Feeling guilty

    Hi, My mother has als and she is in her late stages. Is it wrong to think that i want this to be over? I just feel so stressed seeing her like this and I am tired and I just want to continue my life. I have a 5 month old baby and a wife and I feel my life is put hold on. I just feel guilty...
  3. tripete

    My confession

    Below is a document that i wrote for seminary some years ago. i still hold it to be true although i think it could have been written more gently. i used the same format as the Canons of Dort, because i believe it can be easier to explain things when you say what you do believe and what you do...
  4. Y

    Breathing issues prompting move to skilled care facility. We're scared!

    Hey all, Have only posted once or twice before. I'm the caregiver for my partner, Mike, who has been diagnosed since August 2011. He uses a power chair and a feeding tube (although he's fortunately still able to enjoy a beer every night), a sip and puff respirator as he needs, and we use a...
  5. F

    tech support

    Dear Tech Support, Last year I upgraded from Boyfriend 5.0 to Husband 1.0 and noticed a distinct slow down in overall system performance -- particularly in the flower and jewelry applications, which operated flawlessly under Boyfriend 5.0. In addition, Husband 1.0 uninstalled many other...
  6. S

    Guilt is Growing as Re-Marriage comes closer

    Yes.. as my wedding day grows closer the guilt inside Me is becoming a Monster. Never in Million years did I think I would have ended up a " CALS" and never in a Billion years would I've of thought I would re-marry after such a Rollercoaster of 5 years living the ALS life. This is what Liz...
  7. P

    Coping, Just about.

    Hi, I am new to this forum. My Husband Steve has ALS, diagnosed 1/02/2015. Steve had a trach and feeding tube fitted in May. Just about feeling like I am getting my head around it over the last few months. The care involved is incredibly time-consuming and tiring. I feel trapped at times, feel...
  8. S

    Therapy appointment Left Me Guilty

    Greetings All: I've found a new therapist and really made a nice connection with Her and have been going weekly for a few months now.. 2 days ago at my session we talked about Liz ( my late wife and Pals ) and My now Fiancé. It felt rather constructive and good at the time..But not long after...
  9. P

    Newley diagnosed at 26 years old and have just found out I'm pregnant.

    Hi everyone, This is my first time posting and am looking for any advice relating to pregnancy with a ALS diagnosis. I started getting my symptoms 2 years ago when I was 24. It started in my left hand and eventually the constant twitching started in my arm. I have had numerous MRI's, blood...
  10. A

    Feeding tube scheduled but having second thoughts

    I am tired. My FVC is about 30. I have no regrets about waiting so long to get feeding tube. My family is drained physically, emotionally, and financially, although none of them complain. I still feel enormous guilt. Part of me wants to forgo the procedure, enter hospice ' and be done with...
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