Today, I am again confronted with the simple fact that I cannot believe that everything we have been to each other is coming to an end. Maybe it’s 8 months, maybe three years but we have already lost much and we will lose more and then I will lose him.
I think of the things I will do after...
Raoljost - (A Guiding Light)
Chapter 1
I wasn't able to run fast enough. My legs and arms were going as fast as I could force them to move and they burned with effort. My breathing was labored, but under control. Sweat poured from my brow and burned my eyes.
I could hear the hounds of hell...
ability
age
angry
breathing
crying
dad
death
desperation
exercise
eyes
fatigue
fell
free
grief
lead
lift
nose
pain
power
problem
sleep
story
stroke
taste
wanted
wes
wrong
My PALS, H (Harry), passed away very early Sunday morning, October 1st. His children and I were with him and we were able to keep him comfortable until the end. I can't write details - I'm struggling to get this out. My heart is so heavy and I can't believe it's over. Hospice had just told us...
Here I am going on 9 months since my PALS death
I have gone to grief counseling, I see a therapist and I write in my journal. There is the part of me that knows that I did every thing I was suppose to do. But there is the part of me that repeats over and over the night Jon died.
I got him...
Sorry in advance that this is long.
I had Clinic today, and it so happened that at the same time as my visit the local ALS association support group was going on (they meet in the conference room at my ALS Clinic). Since there was a delay between seeing pulmonary and waiting for neuro they...
I don't know where to turn. I have been grieving for 5 years now. The day my husband of 25 years was handed a death sentence with a diagnoses of bulbular onset als. My life has forever changed. I cannot function without medication. He passed away less that a year after diagnoses. It hurts just...
It has been quite a while since I have visited, but I had to step away and get it together as some of ya'll understand. Dad passed about 2 yrs ago. I have moved on with my life but man I sure do miss him. Grief seems to hit at the most unexpected times. I consider myself a strong person but I...
Hi everyone, it's been a while since I've been on here. I stopped coming because it would make so sad every time. It's been about 6 months since my mom passed and I feel like all of a sudden the sadness is hitting me hard now. I feel irritable and a general sense of unhappiness some days. I lash...
Hello all. I really need to ease my growing fears. I read stickies but like most I need help. I have had on going calf twitching for a few weeks. I believe they were brought on after going to a grief counseling session. I went to my PCP she did a mini nuero and all looks normal.
I am still...
Hi Everyone,
Thought I'd stop in to say Hello. For new members I'm Kim (Skipper). I lost my dad November 21, 2015 to limb onset ALS. He lived with it for 3 1/2 years since his diagnosis. Looking back we think he had some symptoms for at least a year before his diagnosis...