It's late, can't sleep. Just rambing, trying to put some thoughts in order.
I can't believe it's been 4 months since Ferd died. It feels like I haven't seen him in forever, like it's been so much longer. And then I think it's only been 4 months, that's why this still feels so raw.
I'm back at...
My one year anniversary was last month. I actually decided to take that week off from work and spend it alone in Cape Cod, which was always a special place for us.
I went to the beach at sunset on the very last day of this year of grief and sorrow.
As I rode my bike taking in all the...
Hello there, I’m Karen, I’m 53.
My problems started a while ago and I have been so confused, upset and angry with doctors since this has all began. I really don’t think I have MND, or maybe I’m in denial but it just doesn’t add up to me. I would really like your opinions and guidance, it would...
age
angry
arm
atrophy
back
bulbar
bulbar onset
confused
diagnosis
emg
fasciculations
grief
info
mnd
neurologist
onset
pulmonary function test
speech
support
swallowing
symptoms
test
tests
twitches
weakness
Hello all,
I never in a million years thought I would be joining a group here, but turns out it is looking like this is the next phase of my life. I started noticing a little weakness in my right leg, especially getting into a vehicle for ie. Also around the same time, I kept wondering if...
2nd opinion
advice
age
atrophy
back
brain
denial
diagnosis
emg
falling
foot
foot drop
grief
hip
insurance
lead
life
lyme
mnd
muscle
research
stress
symptoms
weakness
wes
I don’t post here often but I you all still feel such a community and connection here. It’s been 1 year and 3 1/2 months since we lost Ted. I was thinking this morning that I used to mark my babies’ ages in months but eventually we just say their ages in years. Is it the same with marking a...
Just rambling. Today was 3 weeks since Ferd died. I've been trying to get the thank you cards done and have been in tears all weekend. I got the online stuff finished but the cards are still waiting, Not sure what it is about them that is so hard but... Getting his things together and doing the...
angry
anxiety
back
breathing
brother
caregiver
cost
coughing
cry
crying
diagnosed
dying
eating
eyes
family
grief
hearing
life
pain
peg
sad
sleep
spasms
video
I hope this post is appropriate for this section, but I wanted to briefly share a personal reflection of my experience during my father's battle with ALS and what I hold dearest to my heart after losing him. The topic of ALS can be a sad discussion, it is sad. But, as odd as it sounds, after I...
I'm sitting here and trying to catch up on so many posts and so many stories. I've tried to do this a few times and it's difficult to keep reading. Maybe it's the memories and the reminders of what life was like. My heart goes out to all of you dealing with the disease, either as cals or pals...
Grief is such a strange process. You read about it, you hear other people talk about it, but it is not until you experience it that you realize how complex and unique it is.
It's close to the 6th month anniversary of my PALS' death. My grief has changed. Someone once told me about the...
I'm struggling with feeling depressed and a loss of interest in every day things. I prefer to just read or sleep over spending time with my family and doing any kind of actual activity. This is not how I used to be and it is not who I want to be.
How do you cope with grief and depression...