grief

  1. pdcraig

    What now? part 2

    It's late, can't sleep. Just rambing, trying to put some thoughts in order. I can't believe it's been 4 months since Ferd died. It feels like I haven't seen him in forever, like it's been so much longer. And then I think it's only been 4 months, that's why this still feels so raw. I'm back at...
  2. M

    My One Year

    My one year anniversary was last month. I actually decided to take that week off from work and spend it alone in Cape Cod, which was always a special place for us. I went to the beach at sunset on the very last day of this year of grief and sorrow. As I rode my bike taking in all the...
  3. R

    Bulbar Onset MND

    Hello there, I’m Karen, I’m 53. My problems started a while ago and I have been so confused, upset and angry with doctors since this has all began. I really don’t think I have MND, or maybe I’m in denial but it just doesn’t add up to me. I would really like your opinions and guidance, it would...
  4. HopeNPrayer

    Probable Diagnosis

    Hello all, I never in a million years thought I would be joining a group here, but turns out it is looking like this is the next phase of my life. I started noticing a little weakness in my right leg, especially getting into a vehicle for ie. Also around the same time, I kept wondering if...
  5. C

    A Big Journey

    I don’t post here often but I you all still feel such a community and connection here. It’s been 1 year and 3 1/2 months since we lost Ted. I was thinking this morning that I used to mark my babies’ ages in months but eventually we just say their ages in years. Is it the same with marking a...
  6. pdcraig

    What now?

    Just rambling. Today was 3 weeks since Ferd died. I've been trying to get the thank you cards done and have been in tears all weekend. I got the online stuff finished but the cards are still waiting, Not sure what it is about them that is so hard but... Getting his things together and doing the...
  7. N

    Family member positively reflecting on life and loss

    I hope this post is appropriate for this section, but I wanted to briefly share a personal reflection of my experience during my father's battle with ALS and what I hold dearest to my heart after losing him. The topic of ALS can be a sad discussion, it is sad. But, as odd as it sounds, after I...
  8. S

    I want those days back

    I'm sitting here and trying to catch up on so many posts and so many stories. I've tried to do this a few times and it's difficult to keep reading. Maybe it's the memories and the reminders of what life was like. My heart goes out to all of you dealing with the disease, either as cals or pals...
  9. M

    Grief

    Grief is such a strange process. You read about it, you hear other people talk about it, but it is not until you experience it that you realize how complex and unique it is. It's close to the 6th month anniversary of my PALS' death. My grief has changed. Someone once told me about the...
  10. Kristina1

    depression

    I'm struggling with feeling depressed and a loss of interest in every day things. I prefer to just read or sleep over spending time with my family and doing any kind of actual activity. This is not how I used to be and it is not who I want to be. How do you cope with grief and depression...
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