grants

  1. Tomswife

    Grants to help with caregiver costs

    Some of the ALS ASSOCIATION Chapters have grant money to help PALS/CALS with the cost of caregiving. We received $2K from the NY Metro chapter. There was an application, and I had to submit detailed invoices that show per diem charges. It is possible that other ALS foundations can support...
  2. D

    Access to Published Papers

    Looks like we are denied access to most published papers. Since it seems that a number of these papers are the result of grants from the ALS Association/Foundation I think those of us with ALS should have free access and not be required to pay the exorbitant prices to get a research paper.
  3. G

    VA Independent Living Program?

    On a FB Vets group today, in a discussion about getting a home generator installed, the VA ILP was suggested as an alternative to the SAH or HISA grants. I went looking and found this old discussion and was amazed. But still skeptical...
  4. G

    Concerned about losing 'Individual Unemployability'?

    Our 'beloved leaders' budget proposal cuts benefits for vets. So much for that promise. One item cut is something called Individual Unemployability. I contacted PVA about this and received the following: Good Afternoon Mr. Kenoyer, It is actually called Individual Unemployability (IU)...
  5. KimT

    Wheelchair Choice

    Last night the representative from the company selling me a wheelchair called. She was not happy that the representative did not bring a chair for me to try. This company is in South Florida so my getting down there is out of the question. I tried to find dealers closer but it was a problem...
  6. maryhahnward

    Lifespan Respite Care Act

    Respite care is one way to take care of ourselves as caregivers. It gives us a little relief so we can do things like visit with friends and family, go shopping, or go sit somewhere and do nothing if that is what we choose. It is not specific for caregivers of a PALS, but we can benefit, as well...
  7. gooseberry

    generators for home backup

    We need to purchase a generator for a/c, refrigerators, and Steves 2 trilogies, suction, and cough assist. Anyone know if grants are available? Thanks, Steph
  8. starente15

    Planning Ahead for Future Needs

    In case this can benefit anyone new to the forum, I'd like to share our experience in getting things prior to needing them. My father never accepted what was happening and chose a "wait and see" approach to most things. Even with my annoying prodding to get things in motion before there was...
    • starente15
    • Thread
    • adjustable advice bed communication diagnosis early father financial foot free grants life pain planning problem reading shower sleep van wanted wheelchair work wrong
    • Replies: 5
    • Forum: General discussion about ALS/MND
  9. MaxEidswick

    Legislation Ensuring Access to Clinical Trials for People with Neuromuscular Diseases

    July 17, 2015 Stay Connected Legislation Ensuring Access to Clinical Trials for People with Neuromuscular Diseases Passes U.S. Senate On July 16, 2015, the U.S. Senate passed the Ensuring Access to Clinical Trials Act (S.139), which removes barriers for those with neuromuscular...
  10. MaxEidswick

    know if there are any scholarships or grants available for children of PALS?

    know if there are any scholarships or grants available for children of PALS?
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