Every day seems more like "Ground Hogs Day". My son and I have been caring for our PALS since September 2011.
The first few years were not bad. He still could talk, walk, and eat. As the disease progressed, he decided on a feeding peg tube and much later, a ventilator. He is paralyzed...
Hi! I’m new to this forum - my brother-in-law was diagnosed summer 2017. I’m looking in to organizations which grant wishes to adults with ALS. I’d love to help him and my sister take their family to Disney while it’s still feasible. He can currently still walk but is weakening and has breathing...
Hi. My husband was just diagnosed in January. We are still trying to figure out all the benefits available to us and how to navigate through everything.
We have applied for the adaptive housing grant and we are in the process of being approved for that. We were told that once we're approved...
What determines the effective date of the VMLI? I have the SAH benefit approved but when along the process will the insurance get approved? Do you actually have to start the construction? What happens if I were to kick the bucket :lol: 1 week into the construction? Would the VA still payout...
Spent all day yesterday looking at houses in the Melbourne FL area. I have been approved for the SAH grant so one primary focus was the Master Bedroon and Bathroom areas. Out of the 10 houses we looked at, there were really only 2 that had possibilities to be modified to meet the SAH...
Just notified that my application was approved. They also approved the automobile grant and Special Adaptive Housing. I submitted the paperwork through the PVA in Tampa thanks to info in this forum. From start to approval only took 5 weeks and included the last week in Dec over the holidays...
I have PVA as my rep and they also want a DBQ to file claim even though my VA medical records under active problems they have ALS and the VA Doctors from Nuerology and Pulminary refused to sign one. I have been to a Neuro outside VA and they even refused as well as just agreed with VA. My...
I am progressing fast, and my CALS is my husband who is disabled and needs hip replacement surgery. Currently, he can still help me.
I have a lady who comes Mon-Fri for 1 hour to help get me cleaned up and dressed.
This is what is bothering me - if my husband gets the surgery, how will he be...