goodbye

  1. T

    The hardest thing

    As I sit here watching my dad I cant communicate with him. I had some grand idea that he would have written me a letter, something. My dad always wrote sweet notes in my birthday and Christmas cards and I figured he would have written me and my mom and brother. I just wanted some grand...
  2. K

    At the end of the battle

    We're at the end of mom's battle. She hasn't had food since Saturday, or fluids since Sunday, and very little of each. She's been in bed since Monday. Breathing is a bit labored but we're doing Morphine & Ativan q4h. Urine output less than 75cc today. Family is coming in to say goodbye and...
  3. D

    "A Day in the Life"

    My PALS thinks we all might benefit from sharing our "day in the life" stories, that is, how does each PALS spend a typical day? If we share this information, maybe we can benefit from knowing some ways that other people manage their time. For example, here's our typical "day in the life"...
  4. D

    My sweet mama is in heaven now

    August and September I spent a lot of time at my mom's. She told me she felt Jesus wanted to take her home. She had told my aunt that she saw a big nun at the foot of her bed. She said she didn't have much time left. I told her that that was why I was there so much, so I could be with her as...
  5. Jeff Long

    One day at a time, 730 times (and counting)!

    So, does one celebrate such an 'anniversary' or lament it?!?! Truth told, I'm happy as hell to make it here, and grateful for the slow progession that allows me to say it, type it, or whatever (almost!) else I want. I appreciate the committed folks who share their time and experience with ALS...
  6. M

    Hard decision

    My husband has been in and out of the hospital the past few weeks because of anxiety/mental issues. He had been on some anxiety meds but was still yelling a lot of nonsense mainly at night when we were trying to sleep. Our clinic advised us to take him to the ER to be evaluated. They...
  7. Nighthawk

    Goodbye

    Dear ALS Forum members, I just wanted to let you guys know how much I have enjoyed spending time together at ALS Forums. Getting to know each of you has been one of the best parts of my life. Even though we only met since this January over the Internet (when I became a member of this great...
  8. L

    all things are difficult before they are easy

    Good day, everyone! My father, 73 and living in South Florida, was diagnosed last month with ALS. He started slurring speech last December. He can still be understood, but it has slightly worsened. He has not experienced symptoms anywhere else, nor has his EMG indicated a spread. It is my...
  9. S

    ALS Poem

    Hi all, I write poetry occasionally and wrote a poem for those affected by ALS. I thought I would share it. Cheers, Sal x A.L.S. When I realised that all was not well I panicked, tried to hide it and hoped not to tell Going along pretending things were fine Believing and hoping that this...
  10. S

    My wonderful father passed

    He passed this morning. I'm glad I got the chance to say goodbye. The feelings of sadness and guilt are overwhelming. Many thanks to all of you for your empathy and advice. My thoughts will be with all of you.
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