goodbye

Went for my composite AFO fitting today, tried a couple different types. Ended up with one that encircles the whole upper calf, wow felt amazing. Pick it up next week, I get to say goodbye to the cane. Can't wait. Mike

I'm new here! I found this site because I'm trying to sell some of the abundance of medical equipment we accumulated while my Dad was sick. But, since I'm here... My father's name is Mark T. Hoops. I'm not sure yet if it's unhealthy for me to use the present tense, but there will never be...

My sweet Tom went to be with our Lord on Tuesday. His diaphragm couldn't hold up to an infection somewhere in his upper respiratory system. The doctors couldn't pinpoint it (lungs were clear) but they are thinking he had aspiration pneumonia in the deep recesses of his lungs. He suffered...

Hello , Sorry for the long post - I am terrified to even be writing in this forum. I noticed a "perceived weakness" in my Right bicep(dominant) in the start of April. There has been some wasting/ stretch marks under the skin when pulled a little that my wife could see as well so I headed...

hello.. My name is Katherine..My mother lost her battle with ALS in May of 2009. Here is our story. My mothers name was Susan :) She was a registered nurse for around 20 years. she was the type of person who made you feel warm and wanted by just being around her or in her care as a nurse. I am...

One of the worst jobs I had to do after being diagnosed was to tell my children the bad news. By the time I knew, my voice had been impacted dramatically. I sounded like I was drunk. That wasn't a real concern to me....my big problem was that during periods of emotion, something closed down...

I was diagnosed almost 4 years ago with PLS and have fallen several times. Thankfully I have not been seriously hurt. In the past 3 weeks I've fallen twice. Once when letting go of my walker for a minute to hug a little girl goodbye. As I bent over, I started to lose my balance so grabbed a...

Start writing something--anything--now. My PALS Krissy (RIP) wrote a page about the disease, a page to me, and then lost the use of her hands before writing anything to her children. There are two pages--titled but empty. She never had the chance, really, to use her eyegaze computer for...

I recently returned from a trip to Minnesota to see family & friends. The thought of traveling alone was a bit scary, but I decided it would be fine. After two weeks there, my friend (who I met on this forum and who has PLS) dropped me off at the airport. After saying goodbye and getting...

Hello everyone, Some of you might remember me from a few weeks to a month ago. I had/have some progressive issues with twitching in my legs, weakness/pain in my hand and breathing difficulty. This is just a heads up about the dangers of self diagnosis on the internet. No matter who you ask be...