goodbye

  1. W

    New to caring for MND/possible ALS

    Hi all - I am new to this forum and new to this role as a care giver to a patient with motor neuron disease. I have been looking for a place to be able to share what I am going through with people who can understand. My husband and I met in 2009 and married in June 2014. In May 2016, we saw his...
  2. R

    Maybe a goodbye

    Tomorrow I will get bottox injections on my neck. Doctors diagnosis is cervical dystonia and this is the best treatment they said. I really don't know if what I have is dystonia or bulbar als and I have read some posts where pals take bottox and have bad reactions. Some of them died because of...
  3. N

    Goodbye to all

    I would like to thank the CALS who have stayed after their losses to help us PALS as best as you can. I can name many of you but I'd leave some out. You have made a miserable two years just a little more bearable. I wish for you healing and a return of joy and happiness. And thank you for your...
  4. E

    Friend Tia has passed

    Hello all my friends, this morning I received a text that our dear friend Tia, is now in a much better place. My wife knew she was in bad shape because her brother informed us that she just received her last rights. We thought we had the time to make it to their home to say goodbye to her, but...
  5. scaredwifetx

    Dogs are family too. Ready to see past the clouds

    Our amazing, beautiful and best friend left us yesterday and said goodbye to his pain. Cinders was not just a dog, he was part of our family. He lived almost 16 years and had a wonderful life. I had to make a tough decision to end his pain and let him go . I sat down on the floor in the vets and...
  6. J

    Confused

    I haven't been here in a while so many of you may not know me. My son and caregiver told me last night not to worry about saying goodbye to everyone,that when my time comes just go, he doesn't want me to linger on. What the hell is that supposed to mean? I have been fighting pneumonia and can't...
  7. K

    ... what helps?

    Hi folks, I've read some of your posts, but this is my first time posting. I'm currently caring for my mom, who has ALS. Feeling a bit lonely and isolated, so I'm reaching out online... About mom: She was diagnosed just over two years ago. She just turned 64 last week. She has limb-onset...
  8. B

    Statistics

    With what we have all seen in the past several months with PALS who have left us, it makes me question the 3 to 5 year life expectancy. Sure seems closer to two years to me. The outside world doesn't see what goes on in this forum. If it were published, I believe there would a much larger...
  9. Grumpy'sWife

    My Grumpy has gained his wings

    Grumpy (Randy) passed away today Aug 4 at 8:46 am. He gained his wings peacefully in his sleep with me holding his hand just as we both hoped he would go. There are no words to describe what I am feeling. Although I feel such loss, I also feel relief that he is no longer suffering. He was an...
  10. L

    Is it just me?

    So, I am all of technically 4 months into this, but I think it's more like 2 years.....but when I wake up in the morning lately it just seems that every morning I am worse. Seriously, how fast is this stupid disease supposed to go? Every day I find I am less able to do things. I am still...
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