goodbye

I just wanted to say that I am grateful. At the eight month mark on February 28th, Brian's "only" impairments are weakening in his left hand and left foot/leg. He walks, talks, eats, drives. He goes to swimming and adaptive yoga. His blood 02 is 98% and his capacity is normal. He still climbs...

Hi! Some update. Last update 😊 After 5 days in Istanbul hospital under survalience of member of Turkye MND-ALS doctor group( he was 65 years old proffesor who had a lot of Als patients) numerous tests 17 vials of blood, emg done by their best emg specialist, they found .... nothing ABSOLUTELLY...

Hi all, My name is Mallic and I don't have ALS. After experiencing every ALS 'symptom' in the book I am happy to finally say that. In 2014 I started experiencing fasciculations which eventually spread over my entire body and I signed up for this website under a different alias. In 2015 I felt...

I lost my wife last night as I was putting her to bed. She had slept almost the whole day and eventually just never woke up. She fulfilled her goals of making the most of her last months and having a peaceful ending. After we realized she was gone, I was overwhelmed with grief at knowing I...

I thank everyone past and present for all the information and support provided on this forum. This forum was my lifeline and best source of information. My love passed a year ago this October and it tears my heart out every time I come back now. I think I was numb for so long but it keeps...

Everything seemed to be going okay with the PEG. Then, the day before I was supposed to fly to Niger for work for a week, then Paris for a day, then MIT for a week of training, she had a little fall. She was able to get herself up somehow, crawling to the living room and hoisting herself up with...

In an odd "coincidence" (I wonder if there is such a thing, really) about one year before my husband showed a single symptom of ALS, I started to poke around and learn more about the disease. I was inspired in part by my friend Lynn's husband's Dx. Wow, I thought, someone else with this? A long...

Just want to offer some lunasin supplements for free in India. My mother passed yesterday suddenly after fighting with disease for 11 months. I have some bottles for lunasin, reliv now and Provantage. Sorry don't have the complete count. I am based in India and I know how difficult is to...

Hello, ..... I'm not sure where to begin. I've never written or have been part of a support group, but I know I need advice and maybe vent a little. My name is Erika and my mom was diagnosed with ALS last June. Her symptoms began with her foot dropping about 2 1/2 years. Her symptoms...

Well after 10 months. ( 6 va paper work / 4 actual labor ) My addition SAH bathroom / bedroom is complete and I take my first shower in new bathroom today. A long haul and just in time as my old bath/ bed rooms are losing their effectiveness and becoming dangerous for me. My contractor has...