go away

  1. S

    That light at the end of the tunnel is a train!

    This is off the subject of ALS but you folks are so comforting. Well I hate to say things were improving because we all know with this disease that just doesn't happen, but with new benefits approved for dad things are looking up from a help and care side. So that was kind of a bright spot if...
  2. hjlindley

    It's not always ALS

    I am assuming the rest of you are like me and we blame everything on this disease. For last three months my blood pressure has gone up, my pulse has been racing and I've been extremely short of breath. Last Saturday night I woke up at midnight certain that I had been bitten by a shark. Extreme...
  3. B

    Frustrated!

    I want to get some feedback on a problem I have. Was diagnosed June 17, 2014. At that time I was scheduled for an appointment for follow up visit on July 17th. I was then scheduled for a follow up appointment October 7th. I believe my disease is progressing rather fast. I have a concerns...
  4. W

    Having a really hard time - afraid of ALS

    I’m 40 years old. I'm having a really hard time. I haven’t shared my fears with anyone, so far. I have an appointment with a neuro in 2 weeks. I keep repeating to myself what I've read several times around the forum: “ALS is about failing, not feeling”... And so far, there is nothing I 'can't...
  5. A

    Limb Onset or Trapped Nerve?

    This is my first post to the forums but I've been reading a lot over the last few months as I start to spiral into a world of worry :( About 7-8 years ago I suffered a pinched nerve which started with what felt like a knot in the muscle under my right shoulder blade. Then woke up a couple of...
  6. S

    Leg pain

    I have been having calf pain. Also legs feel heavy, shaky, hard to walk on, sometimes weird vibrating/tingly pain. Does this sound like ALS? I am going to a doctor anyway, but just wanted your thoughts. If not i will go away.
  7. T

    Another breathing question

    Hi Everyone, I read through the difficulty breathing post from July, but have a couple of additional breathing related questions. I was given a provisional PLS diagnosis in July after presenting with bulbar symptoms with no LMN findings on two EMGs. (dysphagia, dysarthria, clinical neck...
  8. R

    Why people go away...

    I know it is hard to see people suffering but since the beginning of my symptoms I saw that the majority of people just vanished. People I thought were my friends just don't talk anymore even to say "Hello" when I'm on-line. I don't understand this. Today I'm fully functional. I'm loosing my...
  9. R

    Scared please reassure

    It feels like my leg is wobbly when I stand, I have pain from the middle of my calf to my feet. I can dorseflex but it hurts, I now have 2 indentations when I flex, one where my gastro meets my soleus in my calf and one in between my ankle and soleus (bottom of calf). The indentations go away...
  10. K

    Do my Symptoms sounds like ALS?

    Hi, I am a 22 year old male who recently started having some rather scary symptoms that have made me afraid that I might have ALS or some other motor neuron disease. I woke up a week ago with my hands and legs feeling weaker than normal. At first my hands felt almost like they were asleep and I...
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