Anyone have any gift ideas that would be good to get my father who is 78 and has ALS. I would kind of like to get him something sentimental. Any ideas would be appreciated.
He was like a younger, more sarcastic Santa Claus: While the rest of Sacramento slept, Dad would tumble (sometimes literally) out of bed to deliver the morning newspaper to every half-hidden house nestled within the unpaved Delta wetlands. He would come home at sunrise, smelling of coffee and...
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I just thought I would mention a very good book about death and dying, it's called "Dying Well" by Ira Byock, MD,--it helps to think about how to have the all important conversations, how to help your PAL think about things that must be done before they can rest...I'm having that deeper level of...
I’m rattled. There’s no skirting the issue: my keyboard’s betrayal is shaking the core of my being. I just love typing, or I did; and for many months it has been a lifeline of communication. But too suddenly it's becoming a thing of the past.
For a long time now I have been rolling along...
I woke up this morning, went into my room, and saw I had a letter.
Here is what it said in part
"Ray's liver was shared with a 57 year old man from WI. He is married and works full time. He is doing very well since his transplant and looks forward to spending more quality time with his...
Without going into the details, my son has reached out to me and asked for help in dealing with his father's death. He has been steadfast in refusing counseling, until this week when he broke down to tell me he needed help. He is 11, soon to be 12.
The hospice facility participates in a camp...
The Gift of Change
In all affairs it's a healthy thing now and then to hang a question mark on
the things you have long taken for granted.
~Bertrand Russell
For years I was unhappy with most of the gifts I received for
my birthday, Christmas or other occasions. I put a lot of
thought into...
My wife got a call from my daughter's school yesterday.
The principal was saying my daughter approached her about doing some fundraising.
The principal was just calling my wife to inform us, that all the funds collected from their weekly "dress down" days will be donated to the ALS Society of...
Feel helpless.
Feel Afraid,
Lost.
My heart is breaking for my husband.
I watch him slowly loose ability, after ability.
A wonderful person, now torchered......
Pain.
Twitching, Twisting,
Numbness,
More Pain.
Cramping....On and On.
I pray.
Pray some more...
Ask God for Help...
Try to...
My family has lived a very long with this disease. My husband was first diagnosed with PLS, then later ALS. He has been reevaluated several different times with different doctors. They all concur that the diagnoses is ALS. In some ways he has symptoms of both. The progression has been much too...
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wheelchair