My PALS has had two bad days in a row and I am beginning to realize how vulnerable he really is. Yesterday was the first day that he didn't want to get out of bed all day. I figured he was probably just tired from all the visitors he has had. He slept a lot. Last night, he had two seizure...
Hi,
Lynn has PBP and was diagnosed in June 2008. She became symptomatic in May 2007. She had her PEG inserted 11 months ago and has been very stable and strong until this week. Yesterday she told me her ankles were getting a bit wobbly, her arms and shoulders were getting weaker, and she was...
I hate to bother all of the wonderful people on this website, but I have some more questions....
First, I am a 20 yr. old male, junior in college...
About a week or so ago, I started to notice some twitching in my body that seemed to never stop. About yesterday or so, the twitches seem to...
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Hey all,
T's eyes have had dark circles the past few days and we are getting worried. She did not hit her head or anything like that. We wore thinking that maybe how her mask is hurting the bridge of her nose is maybe also giving her the black eyes? Please help if this has ever happened to...
Hello everyone,
It's been awhile since I posted. Quick refresher, my last neurologist appointment was in November, clean EMG again. I've been having fasisculations for about a year.
Lately I've had a couple new symptoms. The twitching was first in my left calves and the pinkie side of my...
okay i have been putting it off for awhile know. so the first thing i noticed was a problem with my left calf it was bigger then my right and above my shin was 2 lil lumps. so i want to my doctor and she ordered a ultrasound to make sure their wasn't a clot. ultrasound showed no clot and good...
Hey Fish,
Please, please answer... I am getting worried. Please girls answer for your father if he is unable to do so. We need to know how he is doing. Our little group needs to be kept informed of our loved ones. If you are able to do so, post , if you are not able, have your daughter...