I have trouble falling asleep mainly due to my hand. When I lay down to sleep I get strong fasiculations that shoot down my arm and jerk my fingers. My hand also will involuntarily clench to the point of my nails painfully digging into my palm. If I lay my hand palm down on the bed it hurts...
Thank you for having a place to ask these questions. I have a deep sympathy for people that are suffering. Now I think I might be one.
I'm not sure where to start, but ask that you please be patient with me. I have researched over and over again the symptoms I am experiencing and it leaves me...
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Hi everyone, another newbie reaching out for answers no one can really give. I'm Sam, a 41 year old single mom of 3 kids.
My journey started just 11 months ago and I'm no where closer to coming to an answer or diagnosis. It started instantly, with incredible pain in my left shoulder and arm...
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I wrote a while back about the laryngospasm I had the misfortune of experiencing and found there are other ALS patients that also suffer with this.
I've had 5 or 6 all total. None of which where as bad as the first. With the subsequent spasms I could at least get a little air in and they...
M has progressed significantly in the last year. He has given up walking and currently is using his Zinger (our traveling electric wheelchair) in the house. We have an appointment at Spaulding for him to be fitted for a power chair. I have appreciated the recent threads regarding the PWC...
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Hello, first off I have a friend with ALS in the advanced stages. I have a lot of respect for him and others who have been diagnosed with this terrible disease.
My story is I'm 39 years old and in August this year I was diagnosed with Idiopathic Brachial Plexus of the upper right extremity...
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Have not posted in quite a while, mainly because I still don't have a diagnosis. Probably pls or hsp.....not that it makes much difference. I'm thinking pls as I have upper extremity involvement.
Anyway, my question is this. I have for the past three months bee experiencing facial spasm or...
I'm a week into having the peg put in...this has been absolute hell. The Drs waited until I reached a certain weight when I think they should have been watching the strength of my core muscles. I am staying so drugged to just deal with it all. The dr increased my gabapentin and baclofen to help...
Hello,
This is my first post. I was recently diagnosed with PLS with right spastic hemiparesis. I take Flexeril and Gabapentin, see a NeuroPT who gives me exercises, swim nearly every day, and have started taking easy yoga classes. I want to do everything I can to get in me the best shape...
4 weeks ago I started 5mg of baclofen once a day. I take it at bedtime and it quickly knocks me out. I also take 300mg of gabapentin(been on it for 5 months). I started noticing that I was feeling very weak. My legs are very weak, my balance is off, my hands are weaker and my twitching has...