fvc

  1. lakelover

    How is this Happening?

    Ralph's progression started in his left arm. He can still walk, very limited use of his hands and arms. still able to swallow and speak although his voice is getting weaker by the day. His breathing is what is going so fast. So fast that in 4 months his FVC went from 84% to 52% and his MIP...
  2. A

    Feeding Tube

    I have a question about feeding tubes. My PALS was diagnosed 18 months ago and has been on a BiPAP 24/7 for over 1 year. I don't know what his FVC (I think that's the correct term) is but I expect it is not good. Is he still eligible to get a feeding tube? His speech and ability to swallow had...
  3. Barbie

    FVC testing at home

    This week my husband is going to get (I Hope) his first sucessful FVC test and CO2 test done by a respirtory therapist at our home. They are bringing two different mouthpieces and I think they ordered the mask that I kept insisting on. I had mentioned it to my ALSA coordinator that we had nver...
  4. Barbie

    FVC Test mouthpiece?

    I can't remember who had info on a mask/mouthpiece for pals that couldnot seal lips around the "scuba" mouthpiece used in lung function tests. My ALSA is trying to help me get a test for my husband and he has never been able to complete a test because of air leakage (loose Lips!). If anyone...
  5. B

    Introducing myself

    I just wanted to introduce myself & wasn't sure where to start. I am 42 yo wife & mom of 1 son that is a Freshman in college. We live in Southern California just outside of Los Angeles. I was officially diagnosed (FINALLY!) last December up at UCLA by the ever warm (HA HA HA) Dr. Graves. After...
  6. mysisterskeeper

    FVC forced vital capacity score

    how does this impact death? Her score is an 11 now. The carbon dioxide levels in the 50-60's.
  7. R

    How often do you/your PALS visit his/her neurologist/ALS clinic?

    My PALS was diagnosed almost 3 years ago. He got his feeding tube about 18 months ago. Initially he was asked to to come to the clinic once every 3 months. When we go, his vitals are taken, his breathing (FVC ?) is measured, then his neurologist or the RN (a very fine RN) checks his arm/leg...
  8. L

    PEG question

    I am just getting tired of trying to keep up my weight. I feel that I spend too much of my day trying to get enough to eat. I have put off a PEG for some time now and have been thinking about getting one in the near future while my FVC is still good. I have done some research on the forums...
  9. L

    An update and an adios

    Hey folks, I'll share the latest update on my health and then I think it's time to say goodbye to you all for now. I found this forum because of my anxiety over symptoms, and see so many carbon copies of my first thread here, in the form of other freaked-out Google surfers. I don't think I...
  10. lovedbygoldens

    Okay, time for the tough question...

    What happens next? We had mom's ALS clinic appointment yesterday. All in all no surprises but we all walked away confused and lost so I am turning to you for your input. Mom has been using bi-pap and O2 at least 23 hours a day. She is only off long enough for transfers (pwc, bed, toilet...
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