fvc

  1. jellis86

    First ALS clinic appointment at VA Hospital

    Hello All, I went to my first ALS clinic appointment at the VA Hospital in Minneapolis, MN. 1st off let me state that the level of care I received there, for the most part, was as good as or better than the ALS clinic at the Mayo Clinic. They both have their good and bad points, but I was...
    • jellis86
    • Thread
    • ability als als clinic back breathing bulbar bulbar als bulbar onset clinic communication early eye eye gaze fvc improvement meds onset pulmonary function test rilutek speech test tests
    • Replies: 9
    • Forum: People with ALS (PALS)
  2. Barbie

    Husband diagnosed with ALS

    My husband was diagnosed 1/2007 but had symptoms like foot drop, twitching, weakness, fatigue and slurred speech for about2 years prior to that. He kept it a secret from me--he knew it was serious and didn’t want me to worry. I didn't notice anything except the fatigue until about 6 months...
    • Barbie
    • Thread
    • als atrophy bipap caregivers chair choking cold coughing cramps cry cure diagnosed diagnosis drugs eating emg exhaustion fatigue foot foot drop fvc helpful hours husband ideas life mistake mucus problems pwc shower sleep slurred speech speech stroke support symptoms test therapy twitching vitamins wanted weakness work worry
    • Replies: 8
    • Forum: Current caregivers
  3. U

    Sleep Study Quesrions

    I got in early for my sleep study and the results were apnea and 70% o2 sat rate. The respiratory therapist asked me if I wanted to come back for titration of CPAP or positional training. I forgot to ask and am curious if these two events are going to happen over time or one cancels the other. I...
  4. C

    Please Help

    I am a 28 year old male who has been to very good doctors over the last nine months, and I am not a hypochondriac nor one to doctor shop. Please let me tell everyone my background. About two years ago I experienced extreme stiffness in my right pectoral muscle. I had it reoccur a few times over...
    • CRR10
    • Thread
    • advice als atrophy bipap brain clinical clonus diaphragm emg family frustrated fvc mip mri muscle muscle weakness muscles pain please help problem progression shoulder sleep stiffness sympthoms test travel weakness work wrong
    • Replies: 10
    • Forum: Could this be ALS?
  5. P

    just an update

    just had a PFT yesterday and my FVC is down to 64%. I am being referred to the National Jewish Hosp. here in denver. its my guess that i may be fitted with a bipap and a feeding tube and seeing a speach pathologist. wish me luck guys. and just a side note, i was denied on my social security...
  6. J

    Respiratory

    I just received the ulmonary test back online today from my dad's visit friday. IT says that his FVC was 73% and his maximal inspiratory was 77% and maximal expriatory was 75 %. Can anyone tell me if this is good. We want hear from the DR. till tomorrow. Thanks THis place has truly been a life...
  7. B

    The progression has started

    Hi, I had posted several times awhile back about my father in law and his "possible" diagnosed. He now has an official diagnosis confirmed finally by his last emg. He has bulbar onset. In August his Fvc was 81% which decreased to 50% by January. He has since gotten a peg tube (although isnt...
  8. J

    What does it look like when the FVC / FEC drop to 50%?

    I read that one should consider using a ventilator when the FVC / FEC drop to 50% or lower. But what does it look like. How does the patient breathe when the FVC / FEC are this low. I'm asking because my dad has stopped going to the neurologist and doing all these tests. He says there's nothing...
  9. M

    FVC in the 40% range ... scared!

    My Pals and father of our 2 eldest sons FVC dipped from the 70% range down to the 40's in the past 3 months ... I'm terrified! I know everyone progresses differently, but I just want to be prepared. I've been reading & searching this site for clues on what to expect in the coming months. Given...
  10. Syekick

    Pulmonlogist Appointment Done

    I saw my pulmonologist today, for the second time, now six months later. My diaphragm hasn't worked in over a year so I have to rely on what's left of the other chest muscles. The great news is that I'm still holding steady with a FVC of 73. Who knows what the future holds but that means I...
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