how accurate is this scale as a way of looking at progression?
my son filled this out and he scores a 32, has been experiencing symptoms now (progessive) for roughly a year.
I know that the progession can slow, speed up, plateau etc. But how accurate in general?
thanks.
This was in a newsletter from ALS Association I get monthly.
Paul Gordon, M.D., at Columbia University working with Robert Miller, M.D., and colleagues in the Western ALS Study Group, presented a Phase III trial of minocycline that showed an adverse effect in the primary outcome, the ALS...
ability
als
breathing
decline
functionalratingscale
fvc
headache
life
manual
muscle
quality of life
robert
testing
tracheotomy
treatment
trial
weight loss
wes
While surfing the net I came across the following website:
http://www.outcomes-umassmed.org/als/alsscale.cfm
It contains an easy do-it-yourself method for determining where you score on the ALS Functional Rating Scale (I'm somewhere between 43 and 44 out of 48 depending upon how I judge my...