functional rating scale

  1. R

    NP001 Neuraltus

    https://journals.lww.com/neurotodayonline/blog/NeurologyTodayConferenceReportersAANAnnualMeeting/Pages/post.aspx?PostID=65 LOS ANGELES–An experimental drug that regulates inflammation and showed a strong signal in a pilot study in patients with amyotrophic lateral sclerosis (ALS) failed to...
    • rknt50a
    • Thread
    • als als research blog chair clinical data decline functional rating scale hope immune information medical neurology np001 professor robert symptoms therapy treatments trial work
    • Replies: 1
    • Forum: Research and trials
  2. gooseberry

    functional rating scale and prognosis

    Does anyone know how the functional ratings scale decline or rate of decli e correlates to prognosis? I can seem to find any articles about this. We all know you cant reasonably predict time but it would be helpful to have some parameters.
  3. Nikki J

    Precision medicine still enrolling

    They are not yet fully enrolled Precision Medicine Program | ALS Therapy Development Institute You have to travel in Boston and they do not pay for the trip or lodging. It is just a few hours visit. Medical history blood draw and skin biopsy. Every month you fill out the functional rating...
    • Nikki J
    • Thread
    • als arm biopsy boston drugs functional rating scale hours medical medicine test therapy travel trip
    • Replies: 0
    • Forum: Research and trials
  4. gooseberry

    functional rating scale

    Anyone know how this is used for prognosis purposes? Is it based on percent decline? The "number" of the rating? Any thoughts are appreciated, Thanks, Steph
  5. allformom

    ALS Functional Rating Scale predictor

    So mom had her first follow up visit since the actual diagnosis..we were told on a scale of 48, she's a 23 and this is in the suspected 8 months she's had it..don't know a ton about ALS but seems lk a pretty scary number to me! Neurologist said it definitely makes him concerned..so can someone...
  6. E

    I urge every patient to help us get this risk/benefit issue revisited by tyou do not

    As an ALS patient this additional delay Seems to ignore many patient's willingness to take prudent risk. I am not searching for an improved acne medication. I urge every patient to help us get this risk/benefit issue revisited by the FDA "A recent review of the double-blind, aggregate data...
  7. A

    Phase 2 trial yeilds encouraging results

    This just came in from the MDA - ALS Division: As it is encouraging for those diagnosed in the future - I am praying that the success of these trials speeds up. Trial participants receiving the highest dose of CK-2017357 showed symptom improvement in the first stage of an ongoing phase 2 trial...
    • apollick
    • Thread
    • age als breathing candida chair clinical clinical trial diagnosed drug trials drugs fatigue fda financial food functional rating scale improvement increase information lead medical mnd muscle neurology professor progression rilutek riluzole sensitivity symptom test testing tests therapy treatment trial work
    • Replies: 15
    • Forum: Research and trials
  8. Chase_Corin

    ALS Function rateing scale

    ALS Functional Rating Scale Has anyone had a look at this? When my dad was diagnosed we found it and at that time he was about a 30 our of 40 40 being the best and 0 being the worst. Yesterday we did it again and dad's down to a 16.... but he can still walk and talk with difficulty. So I am...
  9. GlenBrittle

    My Doc makes house calls

    She was over yesterday and we were discussing the vitamins and supplements I was taking. here is an interesting paper she has received. Qureshi M, Shui A, Dibernardo AB, Brown RH Jr, Schoenfeld DA, Cudkowicz ME. Amyotroph Lateral Scler. 2008 Dec;9(6):369-74. Medications and laboratory...
    • GlenBrittle
    • Thread
    • acetaminophen arm clinical decline functional rating scale medical progression supplements support usa vitamins volunteers
    • Replies: 5
    • Forum: Research and trials
  10. rocmg

    Trophos in Europe

    From PharmaLive: Marseille, France, May 5th, 2009 - Trophos SA, a clinical stage pharmaceutical company developing innovative therapeutics for indications with under-served needs in neurology and cardiology, announced today the initiation of the pivotal efficacy study of olesoxime in...
    • rocmg
    • Thread
    • advice age als atrophy cell clinical clinical study data design diagnosed diagnosis early family food functional rating scale grant hope lead life lou gehrig's disease manual medical medicine neurology planning professor quality of life research respiratory riluzole sma sod1 stress testing treatment treatments trial volunteers website work
    • Replies: 1
    • Forum: Research and trials
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