ftd

My PALS was diagnosed in May with ALS and FTD. Our family I had just been trying to digest the news. We’ve known something was wrong since the beginning of last year. The FTD started first and he didn’t get any physical symptoms until around Christmas when he started choking on liquids every...

https://ftd.med.upenn.edu/about-ftd-related-disorders/what-are-these-conditions/other-disorders/amyotrophic-lateral-sclerosis-als After reading this, there is no doubt in my mind that my husband has FTD along with ALS. So heartbreaking!

My husband passed away early this morning. He went to the bathroom in the middle of the night and fell. The disease had advanced to a point where it was difficult for him to breathe without the ventilator. Unable to get up and to breathe, he passed away. I hadn't heard anything and found him...

Does anyone have experience with FTD in their PAL? My husband is a slow progresser diagnosed 4 years ago with bulbar and hand onset. I noticed a reference to FTD in a different post and had never heard of it, but have been so sad and frustrated with recent changes in my pal that now I've...

So no one ever asked me if I had any family members with dementia. ALS, yes, but dementia no. ALS Clinic was yesterday. I had run across an article about frontotemporal dementia and ALS. I asked if there was a link. The neuro was concerned. My grandmother died from FTD a few years ago...

A recent post in the calls section has made me re evaluate my attitude to things. Who we were as a person has a big impact on how we deal with the monster and how hard/ easy we make things for our family cals friends as things progress. I was always a doer an organiser a busy person, someone...

My mom passed away this past Thursday 04/13/2017 she went to Mayo in Fl. and participated in the bio marker research. She was tested and had the C9 gene her sister passed away 3 years ago with FTD. My mom only lasted a year after her diagnosis. She donated her brain and spinal cord. So I'm told...

Hello, Thank you for allowing me in your group. My sister was diagnosed in 12-12-13, she passed 5-4-15. There are 7 children total, a brother died at 22 months unrelated to ALS, all in relatively good health. My mother is adopted. Both parents 86, still living and in relatively good health. My...

Well, I had been reading up on it as well as its subcategories. It seems thar FTD and ALS are linked genetically or by a protein. The thing is, FTD/MND is almost predominantly associated with the behavioural variant of FTD (BvFTD) and not usually the PPA variant (progressive aphasia) that causes...

I am just curious if this sounds like FTD? I heard ALS causes FTD. My symptoms are that I tongue tie words more frequently, like Rear Wheel drive comes out like Real Wheer and then I have to correct it. Also like elbow joint came out like elboy joint today. Stuff like that, just more frequently...