ftd

  1. C

    Mom now at peace

    As some know on this forumn my mother slipped into a coma this past Saturday. Last night she ended her battle with ALS-FTD. She passed peacefully and got to stay in her home throughout this dreadful ordeal. She was a wonderful wife, mother and grandmother and will be greatly...
  2. 10starr

    Mom has gone peacefully

    I am a newbie here and have not posted too much, but sadly must say today that my Mom died on new year's eve day. She passed peacefully and lost her fierce battle with ALS. Her journey began in Feb, 2010 when she was diagnosed with bulbar onset ALS with FTD. She had hospice care since last Jan...
  3. S

    a couple of random quick questions: vacations and...

    ok, my dad has probably been showing ftd symptoms for about 2 years (looking back) and more recently the ALS symptoms (only noticed the fasciculations at a neurologist appt one week ago) but he has had issues with his hand curling up in the past few months as well as difficulty breathing while...
  4. lakelover

    Need Advice

    I need advice. I understand the aspect of denial when you have been given a fatal disease diagnosis. What I need to know is how long does this denial last. My husband’s first diagnosis was Aug 15, 2011 and the confirmation from Duke was Oct 25, 2011. My husband will not talk about the...
  5. C

    Bi pap pressure settings

    My mom has been on a Bi-Pap machine now for about a year. She uses the Bi-pap about 95% of the day now and her pressure setting is set at 4.0. The last couple of days her breathing seems to be more labored and she keeps asking if the bi-pap is on. My question is, can the settings be adjusted...
  6. B

    Color Wheel!

    There are so many beautiful combinations of colors on that wheel. What? Red and blue make purple or red and yellow make orange! Glorious, glorious colors! All of them. But, what if you want that yellow, blue, green, purple, orange...all at the same time? You keep grasping at the wheel, but...
  7. B

    I feel lost lately...

    I'll say I'm sad and leave it at that and close this thread.
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