ftd

My pal does not take any meds that would dilate her pupils. I have observed in the past four months that her pupils are dilated. She has no speech problems but she is a quad. Her oxygen levels are very good. She is OCD and has emotional problems from mild FTD. Some of these problems have gotten...

My Mom was diagnosed with Bulbar Onset ALS 12/7/2011. Symptom onset was around 5/2011, after several months of testing for anything else, EMG confirmed our worst fear on 12/7/2011. She participated in a drug research for about 6 weeks, to help strengthen her muscles, but we did not see too much...

I apologize - it has been so long since I last have been on here I almost forgot how to post! Life has been a lot of the same old same old. Jim is progressing slowly, though some of his ALS symtoms have been coming up. He has lost weight yet again. His breathing is stable but he has lost a lot...

There is a PALS here that has been suffering from FTD as well as familial ALS. His doctor put him on aricept (the medication to help Alzheimer's patients). I was stunned at the transformation in him since the last time I saw him (about 3 months ago). I had lunch with him and his wife. It was...

Thought I would post to get help with ALS, my apologies

The ALS association will host a webinar on FTLD and ALS today at 4:00 PM EST. Go to the ALSA website to sign up to participate. You will be able to type in your questions during the webcast and have them answered at the end of the speakers' presentation.

A family member is pushing for MJ brownies for Dad. Dad is 78, with bulbar onset as well as weakness in arms, legs, feet, and hands. His diaphragm is about about 50% atrophied. His appetite is still good, though we now cut everything up to avoid choking spells. He is not complaining of pain...

My beautiful mother passed away peacefully February 7th. She was without a doubt, the best human being I have ever known. I will strive to honor the legacy of love that she left behind, for the rest of my life. She is now free of ALS and FTD, but they still have their grip on me. I am trying to...

My Dad was diagnosed with ALS last week and referred to an ALS clinic. They couldn't make an appointment last week because the doctor was out of town for a conference. We expected an appointment this week, but I learned this morning that the doctor's father passed away over the weekend so he...

When I first learned about ALS because of my wife's contraction of this terrible disease, I did not understand the mental ramifications of her condition. Thinking that ALS was all about nerves being damaged was true enough, but never did I think that it affected the brain and personality too...