ftd

Hello everyone. I'm new to the forum. I really appreciate the collective support and wisdom I have read here. My question is about Mom's bi pap use. Until recently, she was very dependent on it and wanted to use it almost constantly. Now, suddenly, she no longer wants it and seems content and...

Hello everybody. I'm new to the forum. I've learned a lot by reading others' experiences and I appreciate the sharing. I need to plumb that collective wisdom now. What does it mean, if anything, that my mom now doesn't want to use her bi pap? This is after wanting it and needing it almost...

My precious Dad passed away at 9:40pm on June 2, 2012. 6 months to the day from his ALS/FTD diagnosis. His last visit to the ALS clinic was May 24 at which time they felt it was too soon to recommend him for palliative care. The day before he passed he was walking on his own and enjoyed not 1...

I am so worried that my PALS is developing FTD. I have read up on it lately and it seems llike it to me. It isn't as extreme as some of the stories that I have heard, but I think it is starting. He was diagnosed in October of 2011, but for over a year before that he was running around with...

Tomorrow we have a clinic visit. Due to the FTD and subsequent denial of his condition, I was wondering what questions we need to ask. We have seen quite a decline since his last visit in Feb. Dad has difficulty lifting his head off his chest, his breathing is poor (it was 56% in Feb) and he is...

Another 7 pounds gone in a week and a half. It's disappointing. No matter what we do - can't keep the weight on. He won't drink ensure. Wants everything to be ok - and the same as it always was....It is so hard to accept I guess. Of course - its hard for me too. The doctor told me that once the...

It has been 3 months and 6 days since my mom, my PALS, passed away. I took care of her at her house, so my own family was put on the back burner quite a bit, during those 2 1/2 years, especially the last 6 mos. or so. I have a blended family--husband, 3 children, 3 step-children, 3...

My dad was given the dual ALS/FTD diagnosis in Nov 2011. He has had hunched shoulders for the last couple years prior to his diagnosis however over the last two days he can barely hold his head up. He is bent over and his chin touches his chest. Is it usual for muscles to decline virtually...

My husband has been diagnosed with ALS - this past month. He has both bulbar and limb onset. The bulbar symptoms are the worst...The panic in his eyes when he is choking is just awful. We are trying to do the best we can in coping with the Wicked Step Sister that has moved in and is trying to...

Hello, my wife has been battling dementia for about a year or so and was just recently diagnosed with FTD and ALS when she was unable to swallow and speak. They inserted a PEK feeding tube recently and we are feeding her at home. We have run into issues of trying to provide comfort and...