frustrated

It sucks because my mom has had ALS for over 5 years. When she was first diagnosed my family and friends were always there and always willing to listen to me when I was upset. As the years went by, my mom hit a stable point, where she hasn't gotten any worse. I am happy for the fact that my...

Hi, I am new to this forum. My husband was diagnosed with ALS a year ago. We have been so busy with doctors, and finding out that not many are very familiar with ALS. We have a new challenge, he is now experiencing FLD. At a loss at how to help. The medication doesn't seem to work all the time...

Hello, good folks and thankyou for taking time too help those of us in limbo or the worried well.My concerns started in 2011 with lip spasms or twitches that i ignored.A few months later in the spring my girlfriend commented my legs were smaller in size and i began to start twitching in my calf...

Well last month when we went to the ALS clinic the doctors thought that dad should have a power wheelchair that tilts him back so his head isn't listing forward. Well dad dosn't want it because he thinks he will have too hard a time breathing. Because he has a weak diapraham I understand where...

Hi All, I don't know why, but I am not processing the difference between ALS and PLS? Some info I have read states that PLS is very rare and hard to diagnose? is it? If you get a diagnosis of MND is it automatically ALS, then you have to wait to see if it is PLS over time. Or is it the...

Feeling frustrated and upset and just need to vent. In short, my family has been talking with my brother about him coming to the west coast and spending Christmas with us. It would mean the world to my mom and lf course i want him to come as well. He has lived on the east coast for 18 years and...

I must ask...I have for the past 6 weeks experienced more and more weakness in my right arm and leg. I can still do the same things as before, but my arm and leg gets very easily fatigued, sore, exhausted really. They feel heavy kind of.... If I have been to the gym f.ex these muscles will...

I have been her caregiver only since this past November. She lives with me. I also have a 19 year old daughter who lives at home. I get frustrated because family always says how they will help but always has excuses. I hate that she is now in the final stages and we aren't on the same team...

I have notice that some nights, not all but a lot nights, I don't seem to move through the night. Legs don't move right, arms don't move right etc. although in my mind/sleep... I wake and feel restless. I used have and still do on occasion, have very severe leg cramps...but in some ways, it's...

ok, i am completely frustrated. i cant seem to get it to work. i can dictate in Word but navigating the net is beyond me. i've been trying this for 6 mo off and on and simply cant figure it out. i'm down to one finger typing and thatt hurts my arm. can someone point me to a good...