frustrated

  1. M

    Experiences/Advice on Clinical Weakness please?

    Good evening everybody. Gratitude in advance to anyone who reads this, or takes the time to respond. From reading all the stickies, I seriously doubt I have ALS. My heart goes out to those that do. That said, there is so much knowledge and experience here and if possible, I would like to pick...
  2. C

    Please share your experience at ALS clinic - very frustrated!

    Hi all! We’ve only been to our ALS clinic once to meet neurologist and clinic nurse which was two weeks ago. During the visit we inquired about a couple trials my Dad may be interested in as well as treatments Riluzole and Edaravone. The Neurologist and Nurse said they could give us no advise...
  3. Signe

    Frustrated and still waiting for answers

    Well I can't believe I came back to this forum but after 6 months I'm still without symptom improvement. I haven't been diagnosed with anything. I gave my heart to these symptoms being a stress reaction and or anxiety, I realize stress can cause a lot, but after 6 months nothing is better. If...
  4. A

    Update and advice needed

    I had hoped that I would be able to report back with some kind of diagnosis, but unfortunately I still do not have one. Timeline since my last post: -went to a podiatrist. Has a foot MRI which showed all sorts of things such as tendinopathy, mucoid degeneration, joint effusions, tenosynovitis...
  5. W

    me again, with a question

    Hi All, I will not post all my symptoms again as my previous thread, I was just wondering about cramps. They have gotten quite a bit worse in the past 2 weeks or so. Mainly in my left leg. Twitching for 6 months now. Anyone have some insight on cramps? I know I had a normal EMG done on my...
  6. F

    Muscle weakness, atrophy

    Hello all, First I would like to say my heart goes out to those struggling with this horrible disease. I’m writing today to ask opinions about my Dad’s situation. I will try to be brief, but thorough. Nov. 2017 - Dad swears he remembers falling while outside, and then getting up and moving...
  7. C

    Symptoms persisting. Respiratory Onset?

    Hello all, some of you may remember I made a post about a month ago concerning my symptoms. That thread is now closed but I will summarize everything here. My concern is that I have been having very concerning symptoms the past 2 months and I am worried about my health. I will break down...
  8. T

    I feel like I'm stuck in limbo. Any advice would be appreciated

    Hello, Before I get started, I want to thank all the PALS and the caretakers for answering these questions. I am a 25 year old male. I do not have a history of illness, and I also do not smoke/drink. I was in good shape 6’1 175lb, and exercised regularly before it all started. It all began...
  9. T

    Please, read. Advice needed. Out-of-pocket care options?

    Hello, I’m new to this forum. My mother was diagnosed with ALS in June of 2017. However, we believe her symptoms began a year or more prior. As you all know, it was devastating. My father is her primary caregiver. The ALS Association assists us with a nurse aid for 10 hours per week. We...
  10. S

    Bulbar ALS?

    Alright so about two months ago I opened a post stating that my speech/sudden lisp has been bothering me. (I couldnt figure out how to re-open the thread so im sorry for posting twice) And honestly it has gotten worse, many s and z’s now come out as a whistle and i have to talk slower to make...
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