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Hello Everyone, First I want to say thankyou to everyone on this forum that has been affected by this disease, whether they are a Pal, afamily member, or friend. Your strength makes you all gods amongst mere men. 2nd, if after reading my post, if you feel I shouldnt be here than tell me to...

Yay...I received my new sling this week from the Osprey sling company in England. It fits better and is much more comfortable. I was afraid my arm was going to break with the other one. The new one was 1/3 the cost of the old one. They don't ship to the US but if you have a friend in...

My dear friend has been in ICU for roughly two months as we negotiate all the issues with finding care and housing for him, but we are almost there. He has been understandably depressed, but hesitant to try new things to help improve his mood. He has lost the ability to use his hands and lower...

Hello everyone. I have posted here before. I would like to post one final time and share the end of my story in hopes that it will help those who come here in future in a similar situation to mine. This will be long, so please don't feel like you need to read it- I am not seeking help, but just...

In Praise of our Redeemer, Savior and Friend - "Let all that is within me, praise the Lord." From Sunrise to Sunset, there's always something beautiful to give God praise for. May you find something beautiful today to lift your spirit. B. Scan and paste the following...

It's been one month since my wife passed. I've had many strange emotions. However, for the last two weeks, it's pretty much been straight up depression. I can leave the house and go anywhere I want but I just don't feel like it. What I would really, really, really like is to talk to my wife...

Hello, I am writing on behalf of a friend of mine who was diagnosed first with Stiff Person Symdrome (1/2018) and now this week has been given a new diagnosis of ALS. Symptoms began in August of 2017 and have been swift in progression. Frequent falls, cramps at night (or sensation of needing to...

We had a wonderful month-long trip to Yellowstone. We arrived on May 20 and departed for home on June 18. It was a long and wonderful trip. My two sisters joined my wife and me for the last couple of weeks of the trip. My friend Greg and my adorable 7 year old goddaughter were there for the...

Firstly, thank you for the opportunity to ask questions even with you all being busy battling ALS. My heart goes out to you all. I have also read the stickies and I want to stress at the very beginning that I am not looking for a diagnosis here (only doctor can do that) and I am also not an...

Hi, everyone. This is such a wonderful community you all have built. I have learned so much already and am so grateful for this resource. My friend has very recently been diagnosed with ALS, bulbar onset. Diagnosis was only about 3 weeks ago, but things have been progressing rapidly as his...