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Well. Where do I start? I came here one year ago, almost to the day, whilst awaiting a firm diagnosis of PLS. 6 months later, I received that diagnosis. I was very happy to have an answer, though it never really sat right with me. I had done too much reading, too much research and asked lots of...

I have done a bit of searching, as I was missing Charlene no end. From what I have found via Facebook, our dear Charlene has gone. Neither Charlene or Peter had responded to emails, which prompted me to find our dear friend. My gosh already I can't remember the exact date, beginning of April...

The below post is MY opinion of why we are all here and losing anyone who is kind and supporting is another loss we all suffer. May I also add that I hope to read all posts of support and not be singled out in any group. Janelle, while I understand why you need to leave, I want you to know...

Our amazing, beautiful and best friend left us yesterday and said goodbye to his pain. Cinders was not just a dog, he was part of our family. He lived almost 16 years and had a wonderful life. I had to make a tough decision to end his pain and let him go . I sat down on the floor in the vets and...

Any Erica users out there? A friend of mine has been very successfully using the Erica system for about eight years. If you're a user you know that it runs on Windows XP. He recently got a message from his Google Chrome web browser that XP will no longer be supported. Has anybody upgraded their...

Hello again. I'm really sorry for doing this but I must do, so, if you feel like kicking me out from this forum, do it, I will understand. I still have fasciculations, mostly in legs (almost 24/7 in legs). I want to ask you this: When I tighten my legs (especially right leg), I got spasam...

A dear friend of mind has recently been diagnosed with ALS. She will have surgery next Friday as she needs help with breathing and will be placed on a ventilator. She just received word that she was approved for SSDI and Medicare. Medicaid was denied. Her husband has insurance (BCBS) through his...

Good day. My name is Steve. I'm a 37 year old male from Wisconsin (Go Packers!) A few months ago, I started having body wide twitching. I didn't think to much of it, because I am very active and thought that my muscles was just over reacting to the strenuous activities. But as the months...

Hi there. Some of you may know Sprawl. He is my husband and was diagnosed with ALS in January. I have so many emotions varying from day to day. Part of me just hopes that this diagnosis was a mistake. Like this can't be happening right now. I also get angry because this is my best friend...

Hello, I am a 24 years old woman, and it has been a month since I have been experiencing symptoms. It all started after a friend told me about a common acquaintance who had been diagnosed with MS, I was sad about it but did not think about it too much. A few days later, I started searching...