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Hello dear. I do not speak English. I will try to write briefly and clearly. 1. I am 26 years old 2. In January ill with the flu. Was sick for 2 weeks. 3. After. A month dizzy. 4. Was the stress. I'm a hypochondriac. Thought thrombosis. Was sick and pulled his right leg. Calf. 5. In February...

I am angry right now, any noise is pissing me off, I'm snapping at everyone and I know I'm being unreasonable but I can't seem to stop snapping which means only one thing....a big, nasty , snot dripping ugly cry is creeping up on me and I so don't feel like going there right now....my daughter...

It was a bit of a dis-appointment. As in, he had no magic anti-spasticity, anti-fatigue bullet. But it was also reassuring in a strange way. The physiatrist himself was wonderful, but he did not have the answers I was looking for. My goal was to find a way to reduce night time spasticity and...

We are once again in Yellowstone. We made reservations for this trip back in October of 2015, knowing that we could postpone, shorten, or cancel the trip if necessary. As departure time approached, I seriously considered postponing or cancelling the trip, but persevered with the preparations...

We all have been way too quiet! I know it is hard for many to post and many of us have been struggling physically and/or emotionally. What have you all been doing? I was lucky to have a trip already planned before my sister's death and last month was able to spend 2 weeks with our cousins...

We just had our first ALS clinic in Rochester, MN. It went very well, and we came away with more information and resources. Wonderful people there. This morning, my husband was talking with a friend, and he told this friend that he doesn't think the ALS will ever affect his legs. His started...

Can This Be ALS Hello, First of all let me start of by saying that I am very sorry that any of are dealing with this disease. Whether you are a family member, a friend, a caregiver or a PAL, my deepest love and sympathy go out to all of you! I pray for a world without ALS! I read the...

My husband has drop foot in his left foot. It is not even actually "floppy", but most re that it will only raise a tiny bit. He has had an EMG that per the Dr was "three times longer" than anticipated. Now he is moving on to a 2.5 hour MRI, brain and back and limbs. The positive things here are...

I've long been amused at how upset women can get when they show up to a function and see someone wearing a dress they own and looking better in it. So today, Day 2 of ALS Public Policy Converency 2016, our dear friend Chally shows up wearing his clown gear (always a big hit, even without the...

We dropped Heidi off at my son's place and made it to the hotel last night. An old Air Force friend of mine who has MS is supposed to drive into DC with his wife to have lunch with us and (hopefully) get some inspiration from the guy with ALS. It's starting to look like a catch up on sleep day...